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@suzie2017

I took my husband to the Infectious Disease Doctor yesterday. He said there is no way to correct his collapsed left lung because it was caused by excessive secretions. He said the secretions will continue. He is holding off on prescribing the MAC treatment until he gets the report from Colorado on the secretions that were extracted during the bronchoscopy. One report has come back already showing he has pseudonymous again. He is now on Cippro and the ID Doctor wants to wait until the Cippro is gone plus 7 days before he begins the treatment. He also said he wants to see all of the medicine bottles (there are many) so he can do a good analysis to make sure the MAC treatment will not interfere with his current regiment. My husband was fully dressed and weighed in at 115. He lost 3 pounds in 2 weeks. He is very thin and weak.

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Replies to "I took my husband to the Infectious Disease Doctor yesterday. He said there is no way..."

@suzie2017 Hi Suzie. I hope his doctor can get your husband straight very soon. My prayers are with you both.

@suzie2017...can you get some hi calorie supplements for hubby to get weight on him. Will insurance cover a session with a dietician for you to learn other strategies?
Tdrell

I have started preparing him mid-morning, mid afternoon and evening snacks. It is still very surprising, but he eats very well. I search for snacks on Pinterest and other sites but seeing a dietician is also a very good idea. Thank you.

@suzie2017 Hi Suzie. If your husband goes into pulmonary rehab ,a nutritionist comes with it. You can add ice-cream to powdered protein shakes to pack on some calories. Add mayonnaise or sour cream to mashed potatoes and cheese on top! People with breathing deficits require 10 times more calories as healthy people. We burn more just trying to breathe. (coughing a lot will also burn up your calories) We have to fatten your man up!

My husband has been in pulmonary/cardiac rehab for about 6 months and no one has said anything about a nutrionist. I really like that idea. I have been loading him up with calories. Last night we had chili with sour cream and cheese and also Texas Toast. He has a dish of ice cream every night. He eats really well but the pounds keep coming off. He is doing well over the weekend so far. Our son came in from Colorado to surprise him. Thank you for the good tips. Hope you are doing well this weekend also.

@suzie2017 Hi Suzie. Is your husband doing the nebulized saline (sodium chloride)? It would help a great deal. If he is not on that, have him ask his doctor about it. It will help thin the secretions and bring them up.

@suzie2017 It sounds like you are right on track with what you prepare for your husband. I love chili and have been meaning to make some. You just inspired me to do so. I guess not all rehabs provide the nutritionist. The one where I live does. I used to come across good recipes for putting on weight when I'd search the Living with COPD websites. I have a feeling that once his infection is under control; he will be able to put the weight back on. That is how it happened for me anyway. So....your son is there visiting you this weekend? How nice! I am sure that is a real spirit booster for you both. I am feeling great this weekend, thank you. I attended a small wedding on Friday, went to the beach, and planted some veggies in the garden. Did you all get out with your son? TTYL, Terri

Here is a snack that I found on Pinterest for individuals trying to gain weight. On a toasted English Muffin, spread a thick mixture of smashed avocado, spread some ranch dressing, and layer turkey lunch meat, sliced tomatoes and nice slice of cheese for the topping. Put in microwave for 10 - 15 minutes. I actually put the cheese on during the final few minutes. Yum!

Yes, he has been on a nebulizer for 3 - 5 years. He is very loyal and uses it two times per day. He is suppose to use his Aerobecca following the nebulizer treatments but he seldom does. The Aerobecca requires the user to exhale to help loosen secretions so that they can be extracted easier. It is an effort for him to use the Aerobecca. He also uses Musinex to loosen the secretions and it works very well. Have you ever tried a shaker jacket? We are considering getting one. Often children with cystic fibrosis use them to help loosen their mucus.

@suzie2017 I am glad that Jess stays regular with nebulizing. I have not tried the vibrating vest. I did see a demo booth at the conference in D.C. Let us know if Jess gets one and if he likes it. Is your son still there?