Nerve Pain

Hello and thank you for your comments!
Unfortunately most people get tired of our pain, they do not want to hear about it and they don’t understand it even if you have the most clear diagnosis through MRI and blood tests
They say they do but they don’t and they get tired.
I’ve had brain surgeries, brain radiation, blood tests showing RA factor, swollen joints, ankles, pale skin and the list goes on with recently lesions in the liver
People still finds me looking great ( I try ) and my best friend cut me off just a week ago when I tried to share scary result from my recent lver US
I decided to kit share anything else
If I die they will find out haha
I aplogize for sounding so pessimistic and almost sour but what I mean is that we must try to not tire people with our pains. It makes them feel uncomfortable and frustrated because they don’t know what to say since they can’t help us and if they are our loved ones they also suffer along with us
Many of us are disable, we need their help. They will help, they just don’t want to hear us whining

@kenyalama
“Best friend”? That person wasn’t a best friend, far from it at least in my opinion.
Best and good friends like you as you are and they accept you problems and all. If I had to be that careful when talking to my friends because they are so sensitive and selfish and not make them uncomfortable then I don't want them anyway. Responsibilities come with being a friend especially a best friend. A best friend is ALWAYS there for you.
You come here, many members may have experienced the fear and the same problems you are facing and hopefully can ease your concerns.
Blessings,
Jake

Your reply is definitely food for thought and I appreciate it!
Blessings to you too !

By the way my liver cysts are a new diagnosis to me added to many other serious ailments and unfortunately neither cancer no heart disease. I feel that no one takes me seriously because have none of the latter conditions but my life is miserable
So, here is my question :
Anyone diagnosed with liver cysts and gold bladder polyps with severe abdominal distensión, abdominal pain, bloating ? Diagnosed with Ultrasound
Coukd not have more problems
RA TM arachnoiditis,, CRPS, inguinal hernias, IBS, lung nodules I might be forgetting something I am still in a good mood and a happy grandma but very limited and use an electric scooter

You have been through so much-I will keep good thoughts for you❤️

@kenyalama
I haven't had been stricken with anything you mentioned.
Most importantly, I think is to keep a positive attitude and be happy. Not always easy though.
But I believe that we have to cope with whatever comes along and stress, anxiety, depression, sadness, etc only accentuates and makes any problems we have worse.
I believe that you are very strong and determined. I have had my share of problems but never so many as you.
Take care,
Jake

kenyalama
Just a thought but I'm wondering if you'd get more responses in another area. Maybe a Volunteer Mentor or a moderator could move your comment where more people are dealing with some of your conditions.
Jake

I go for physio for my pain and discomfort. Shock wave therapy helps somewhat. It is important to calm your nerves. Gradually things improve. Hang in there.

Good morning @kenyalama i,too, think it might be a good idea to participate in the discussion group. Here is a link:
https://connect.mayoclinic.org/group/digestive-gastrointestinal-problems/
Check out the individual groups to see where you might fit in.

I’ve had nerve damage and severe pain since 2001. It takes months of medications for the nerve pain to calm down. This last flare was 10 months of agony from knife like pain from my sacrum into my rectum, shooting down all nerve pathways from my waist down, severe deep leg pain and aching, feet pain, burning hands up my forearms with numbness and strong vibrations in my hands. I read on one of these sites that a Dr. said to avoid sitting. I try to walk around a lot now and I never miss a dose of the anti-seizure medication (Lyrica). I also take tramadol 4 times a day, Ibuprofen and CBD (5 mg.) at bedtime. I did have a positive ANA and small muscle ab titer so it is possibly an autoimmune condition causing the small fiber neuropathy. It doesn’t really matter unless steroids would solve the flare. Steroids come with their own set of side effects so I may be better off doing what I’m doing. I couldn’t walk to the mail box last January and just this week I started walking over a mile with my husband because the nerves finally calmed down. I try not to deviate from my medication regime because then I start the whole process over again.