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feeling defeated

Neuropathy | Last Active: Oct 13, 2021 | Replies (33)

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@noanswers

I have your symptoms. My whole body pins needles-faciculations-burning-cramping-paresthesia. No answers-many tests and guess what? I am on a statin and have a low IGM of 35. I feel your pain - literally.❤️

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Replies to "I have your symptoms. My whole body pins needles-faciculations-burning-cramping-paresthesia. No answers-many tests and guess what? I..."

@noanswers I don't have cramping. I am not sure if I have muscle twitching but I have noticed when I hold things in my hands sometimes my hands jerk. It is weird. The only burning pain is in my left hand and it comes and goes. I don't have cramping. I have not been on the statin drug for too long. I think in Dec it will be two years. I went off of it for a few months. My Dr. started me on 20 and bumped it up to 40. I have a nurse friend whose sister is also a nurse. She woke up in achy pain of a 9 on the 10 scale. She has been taking the statin for 20 years. She stopped it and went to some Docs. After she stopped it her pain went down to a 1. They started her back on a low dose and the pain came back. I am waiting blood work results from a hematologist. He says he is not worried about the M. He said if it were high he would be. Or if I had some of the other immunoglobulins that were low or high then he said he would be worried. But I read up on the M but of course I am not a doctor. My M was 39. I think what is more worrisome to me is what comes next. My heart rate is concerning also. After I started the pricks in March of this year I woke up in April with a feeling in my chest. I honestly thought it was palpitations going wild. I have had them here and there since I was young and was checked out. It blew my mind when the cardiologist said my heart rate was 184. I think it is related to the nerve problem. I will see the Neuro in November and I will discuss that with him and also the statin drug. I will bring that up. I was planning on getting a referral to Mayo but that would be a year away for an appt. That sucks. If I get any answers I will share them with you. I thank you for sharing. I know how frustrating it is not getting answers. It is a slow time making the appt. finally seeing the Doc then waiting for tests and answers. You are the first person I have met with the pin pricks. You don't have them in your eyes do you? The neuro ophthalmologist said they are related neurologically.