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@oldkarl

@peach414144 I know what it is to give up. I have been diagnosed genetically with a number of issues, including Gelsolin, RYR2 and LGMD2m, Stage 3 myelofibrosis, with about 30 known cancer locations and systems now in my body. So I thought I might start by tracking down a comprehensive list of symptoms/signs for these first 3 things. So I found just one list which says it includes just the Gelsolin and LGMD2m. Then I compared that to my list of items my doctors have found in these last 81 years. There are three hundred forty on the list, and I have been diagnosed with three hundred 332 of them. Then when you add on some other stuff like my hypoparathyroidism and hyperparathyroidism, the list really grows. oldkarl

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Replies to "@peach414144 I know what it is to give up. I have been diagnosed genetically with a..."

Hi Old Karl, this is peach: I do thank you for your thinking of me. Yes, we both have many, many health issues. As you know it takes a hardened person with a huge heart to deal with it. This site is healthy to vent or to encourage others with their health issues. At this point in time it seems to be serious with our health care. This pandemic is affecting all peoples in many, many areas. Some life threatening. To continue on with this would take up many, many hours of legal and true issues of the dangerous of health care that is happening now. So where do we go now? Patience can put a life in danger as we know that to address the health issue sooner than later is to save the life of the patient. Any which way, here we are and we know that to address all the issues involved sooner than later can be life saving. Enough, time to take a swim, eat and watch TV. With Love, Peach