Mysterious hearing loss, what could have caused it?

Posted by megwest512 @megwest512, Aug 2, 2021

I am a 27 year old, healthy woman with no health conditions. Last September I woke up one day and thought I had wax buildup in my left ear because I could barely hear....long story short after many specialists, scans, and failed steroids, nobody has been able to tell me how I lost my hearing.
My audiograph results show conductive hearing loss, yet I had no trauma whatsoever that could have caused it. CT and MRI scans are all normal and none of the ENT specialists that I have seen in Denver and Atlanta can give me any answers.
I am posting this simply to see if anyone has or knows someone that has experienced anything like this, and maybe can give me some insight or theories.
Thanks in advance!

-Meg

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@colleenyoung

Welcome, @ashifp. I think @julieo4 @tonyinmi @naturegirl5 might have some thoughts for you about pain on the side of your head after wearing your new hearing aid for a few hours.

Ashif, do you wear one or two hearing aids? Is the hearing loss in only one ear?

Jump to this post

I used to wear one side earlier and was same.. Then I just tried both ears but got worsen..

REPLY
@naturegirl5

Hello, Ashif @ashifp Is your hearing affected in both ears? Or one ear but not the other? Does the hearing aid help you to hear better? Did the hearing loss happen suddenly or gradually over time? I'm puzzled by the pain you describe from the hearing aid. Did you get your hearing aid from a doctor? If yes, can you return to that doctor and describe the problem? I'm wondering if an adjustment in the hearing aid would help.

I am in the United States. My hearing was tested by a licensed audiologist in a doctor's office (otolaryngology). When the tests showed that I would benefit from hearing aids, I bought the hearing aids from that office. I can go back to that office whenever I want if I have problems with the hearing aids. There is no charge for these visits.

I am also puzzled by the surgery recommendation. A bone issue in the inner ear? With the temporal bone where the inner ear is? Do you or did you have an infection in that bone? It will be your decision, of course, and we are not doctors or medical professionals here at Mayo Clinic Connect. For me, surgery is a last resort and I try everything else recommended before I think about having surgery.

I hope questions will help you find a solution.

Blessings,
Helen

Jump to this post

Thanks Helen for your concern. Actually in Malawi do not have advance hospitals where I actually can get better treatment. I would like to go other country to have proper treatment. But in India aswell I did not get my answers.

REPLY
@jakedduck1

I don’t know anything about hearing loss other than your hearing is impaired in some way.
I have problems hearing when more than one person is talking. Also awful problem understanding accents. I have a friend in Nigeria and I can’t hardly understand him worth a lick but he understands me fine. A few years ago I had a hearing her and I was told but there were certain tones I couldn’t hear or had difficulty hearing I don’t remember exactly. I didn’t have any hearing impairments other than the tone issues. I was curious if anyone had anything similar and if it was correctable, perhaps by hearing aids.
Any help greatly appreciate it,
Jake

Jump to this post

@jakedduck1

Hey Leonard

Age related hearing loss (Presbycusis) is so common and leads to loss of certain tones. Everyone does not hear the same as they did when younger….higher frequencies diminish even in those who do not need hearing aids and have no trouble understanding anyone. That plus any underlying medical conditions such as diabetes and any ototoxic medications taken over the years or subjection to loud noises also diminishes hearing.

You may not need aids. But , if you are concerned, why not schedule a hearing test. Have an audiologist test your word recognition scores and do some tone testing and bone conduction testing. You may have a mild loss in one or both ears. Go to an ENT practice and have your ears checked first by a Doctor to rule out any impacted wax or other condition. Then see an audiologist in that practice. If they say it is correctable by aids you can always trial one or a pair for 30 days (law) They are not cheap but you may do well at Costco. They may help but they are not miracle workers….that’s why they are called “aids”.

The thing about not getting aids is that you can help keep what you have and not have it deteriorate any further by keeping those little hair cells in the inner ear stimulated. Your problem with accents and understanding in crowds or when more than one person is talking is an indication, to me, that you have some loss. I suggest getting it checked out and, if you do go that route of trialing aids, get on the hearing thread here at Mayo…there is a wealth of information from experienced users…like myself. Diet is such an important factor too.

FL Mary

REPLY
@jakedduck1

I don’t know anything about hearing loss other than your hearing is impaired in some way.
I have problems hearing when more than one person is talking. Also awful problem understanding accents. I have a friend in Nigeria and I can’t hardly understand him worth a lick but he understands me fine. A few years ago I had a hearing her and I was told but there were certain tones I couldn’t hear or had difficulty hearing I don’t remember exactly. I didn’t have any hearing impairments other than the tone issues. I was curious if anyone had anything similar and if it was correctable, perhaps by hearing aids.
Any help greatly appreciate it,
Jake

Jump to this post

Properly fit hearing aids will probably help you. What you describe here is typical of sensorineural hearing loss. Accents are hard and understanding speech in noisy settings is too.

REPLY
@ashifp

Thanks Helen for your concern. Actually in Malawi do not have advance hospitals where I actually can get better treatment. I would like to go other country to have proper treatment. But in India aswell I did not get my answers.

Jump to this post

Hello again, ashifp @ashifp. It seems that Malawi does not have the resources you need to solve this problem with your hearing and hearing aids. Can you see a doctor in Malawi who can recommend another place for you to go?

Helen

REPLY

I ended up with TOTAL HEARING LOSS for 4 long months ... after I went to an URGENT CARE FACILITY connected with a hospital in Mesa Arizona. The hearing loss slowly came back after I left the third hospital .... after I acquired three types of PNEUMONIA at the first hospital's ICU unit. I could not get an ENT doctor to see me ... when I was in the three hospitals 2-4 to 6-12 of 2020. When I tried unsuccessfully to get a resolution to my sudden TOTAL HEARING LOSS, a couple of the hospital nurses said I was deaf probably because I was being given three types of ANTIBIOTICS to cure the three Pneumonias I got at the first ICU. Another nurse said that was true .. but there are actually over 200 medications, in addition to some antibiotics, that can cause a patient to get temporary or permanent hearing loss. I slowly got my hearing back ... but it is still not 100%, after I left the third hospital and they stopped giving me antibiotics. By the time I was finally able to get two ENT doctor appointments and was tested, my hearing was back to about 60% and neither doctor could explain what happened to me.

On 3-24-2020, after 4 weeks at a second hospital in Phoenix, I was finally correctly diagnosed ... after an 8 month search ... of my real disease "M.G." and I now have a long list from my new Neurologist doctor of certain medications that are unsafe for me, as an M.G. patient, to use at times ... such as STATINS, STEROIDS, BETA BLOCKERS, ANESTHESIAS, and ANTIBIOTICS .... such as the TOBRAMYCIN that I was given at the first hospital. So recheck your medications with a qualified Pharmacist. HOPE YOU RECOVER like I have.

REPLY

Hi, my son-in-law lost total hearing in one ear. He woke in the middle of the night sweating rapid heart beating. They lived next door. I took his BP and it was like he was in a-fib. He went to the hospital and next day lost hearing. This was prior covid so ENT took him right away. He received weekly inner ear injections for months but it never came back and no diagnosis. He also had nothing wrong with his heart. Everything medical was normal. They said anxiety attack. This was at least 6 years ago and he just learned to live using one ear and no aids. I think he can get a hearing device but finds he has adjusted so he doesn’t. He was about 33 at the time. Wish you the best..Joanne

REPLY
Please sign in or register to post a reply.