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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)Comment receiving replies
Hello group, my name is GaeLawree, I was just diagnosed with Mycobacteria Avium Complex (MAC), I haven’t started treatment yet, appt with doc next week. I am 66 & have had shortness of breath for a few years. I was diagnosed with COPD & got progressively worse. I had to really push to get doctors to find the MAC. I don’t seem to have other problems. I am active as much as I can be. I have horses & ride three times a week & I like gardening. I have a stationary bike to ride too. This diagnosis gave me hope of getting over this but as I researched it I got worried, I’m worried about the long term antibiotics. I have hypothyroidism & Hoshimoto’s & went through a 9 month protocol & got that under control. Now I think the treatment for MAC will really mess that all up. I have read a lot of previous posts & learning a lot. I am glad I found this group because I think this treatment is going to be tough.
Replies to "Hello group, my name is GaeLawree, I was just diagnosed with Mycobacteria Avium Complex (MAC), I..."
Wow @windwalker that is a beautiful painting, very clever! Sounds like you are kept very busy.
@gaelawree beautiful work, the horses are so realistic & beautiful, very talented.
@gaelawree Wow girl, you are very talented! I love your jewelry. I bet your customers really treasure your pieces.
@heathert Thank you Heather!
@gaelawree all you need to do is wear your mask when you work around them. I saw on the news the other night that horses can have à pulmonary disease but I can’t remember how it was call. They said human can not catch it from horses but horse can from another
horse. You may know about that already but it was news for me. It is a contagious pulmonary disease for horses. Nick
This kind of chat does not belong on a medical website you are filling up my email box with chatter I'm going to have to get off and I didn't want to emails are supposed to be for medical content only
Hi Karen and everyone in the MAC group,
I can appreciate that some members would like to keep the discussions on Mayo Clinic Connect focused on medical issues only. One of the hallmarks of a connected community of members supporting one another while living with chronic conditions is the spill over into “off-topic” discussions as people get to know one another.
To respect everyone’s use of this community and to choose what conversations they take part in, I suggest that non-medical discussions be kept in separate threads. For example: @windwalker started this discussion a while back that is a great place to talk about more than just MAC:
- We are so much more than our disease https://connect.mayoclinic.org/discussion/we-are-so-much-more-than-our-disease/
If anyone has any questions about the use of Connect and the supportive, informative community you’ve built, please send me a private message or contact me using this form: https://connect.mayoclinic.org/contact-a-community-moderator/
Or...have those conversations in private messages available on this site.
Yes, you are probably right, but it is nice though boomerexpert to see that we can still have a life outside of this (for some of us)debilitating disease. I don’t have Facebook so I miss a lot I am sure, but our ten kids are the Facebook police and will rat each other out to me if necessary! The first of the ten went to RISD so I enjoyed reading about Mayo members’ creativity even if I couldn’t see it. But that’s just because I have no “active” life since MAC! The reprieve was nice!
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@windwalker Your painting is beautiful! Thank you, I’ll post a couple of my works.