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helenstamas (@helenstamas)

Primary Orthostatic Tremor

Bones, Joints & Muscles | Last Active: Oct 11 5:19pm | Replies (9)

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@helenstamas

Hi Vicki, I wish I could suggest another medication but I do not know of any that help. Primidone is suggested but it did not give me any relief. I make sure that I exercise every day, by walking and doing floor exercises. I have continued them for the last several years . Your description is exactly what Ortho Tremor is.

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Replies to "Hi Vicki, I wish I could suggest another medication but I do not know of any..."

I was diagnosed with Orthostatic Tremor 5 years ago. It is life changing when one cannot stand for very long! I tried primidone for 3 years without improving, so stopped with MD’s approval. I am 75, so am hoping O.T. does not get worse. It is difficult for others to understand…we can walk, but not stand. Does anyone else find that to be true?

There is a lot of information at http://www.orthostatictremor.org

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