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← Return to Primary Orthostatic Tremor
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Brain & Nervous System | Last Active: Jul 29, 2023 | Replies (29)
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Hi Vicki, I wish I could suggest another medication but I do not know of any that help. Primidone is suggested but it did not give me any relief. I make sure that I exercise every day, by walking and doing floor exercises. I have continued them for the last several years . Your description is exactly what Ortho Tremor is.
Replies to "Hi Vicki, I wish I could suggest another medication but I do not know of any..."
There is a lot of information at http://www.orthostatictremor.org
There is a video on Itunes of a British-sounding man describing and showing his orthostatic tremor! It was EXACTLY my condition except that he was much more worn out after a small amount of standing! Try and find it! We need more recognition of this condition!
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I was diagnosed with Orthostatic Tremor 5 years ago. It is life changing when one cannot stand for very long! I tried primidone for 3 years without improving, so stopped with MD’s approval. I am 75, so am hoping O.T. does not get worse. It is difficult for others to understand…we can walk, but not stand. Does anyone else find that to be true?