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Pudendal Nerve Entrapment/Neuropathy/Damage
Chronic Pain | Last Active: Oct 29 9:41am | Replies (592)Comment receiving replies
I had a motorcycle accident in 2018 that caused serious injuries. After a full year, I was healed. Then one year later I started having problems with pain on sitting. After 18 months of misdiagnoses, an MRN showed scar tissue compressing two of my pudendal nerve branches. I am having decompression surgery with removal of the scar tissue in a few weeks. Curious if anybody has had this procedure and the outcome.
Replies to "I had a motorcycle accident in 2018 that caused serious injuries. After a full year, I..."
I have peripheral neuropathy that is considerably worsened by sitting. There seems to be compression of the sciatic nerve by the piriformis muscle. Hopefully, it can be fixed by physical therapy. Has anyone experienced this? Amitriptyline has worked the best for controlling the nerve pain.
PT and a good program of home stretching works on my sciatic pain. My friend did not have coverage for PT, so I showed her my routine, and it helps her as well. The other thing that helps is laying on ice placed at the site where the piriformis and sciatic nerve converge.
Finally, sitting is a horrible culprit for me as well. I can ease it by moving - I even do some normal seated activities while standing up (typing, running my sewing machine) or lying down (reading.)
I am so sorry about your diagnosis and scar tissue
I was diagnosed with scar tissue in the spinal cord, the lowest part, the causa equina. It’s been 18 years. The Mayo Clinic doctors called that scar tissue arachnoiditis. It causes among other symptoms, serere pain in the pelvic floor. ( Mayo Clinic calls it pelvic floor tension mialgia )
I wrote about this on this site several times. As far as I know, any invasive procedure on the spinal cord scar tissue can cause more scar tissue.
Before jumping to surgery would you be able to get a second opinion ?
Maybe ay the Mayo Clinic itself?
I had epidurals, taken those meds, with no relief
Last wee I had Botox injections to relax the pelvic floor but so far, again, no relief
I ended up using a wheelchair and seating on memory foam pillows that I take everywhere I go
Good luck! I do hope you get relief sometime soon ! 💓
@dcdusek you will notice that I have moved your post and the responses to it into an existing discussion on pudendal nerve entrapment so you may benefit from past conversation as well as to have a central discussion for you and others on this topic.
You've heard from several members already! What are your main questions/concerns going into your surgery in a few weeks?
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I sat on a donut for 14-1/2 years. The only thing that worked for me was Topamax, an anti-seizure medicine that I took off-label for an unrelated issue. I only took it for a short time - maybe 2 weeks. My PT said she had heard it works. What have you got to lose? Mikayla