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Mysterious shortness of breath: What has helped you?

Lung Health | Last Active: Oct 23 10:20am | Replies (3405)

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@sussistrikesmichelle

Hi there, I read through most of these pages and thought of sharing my struggles in hopes to get advice, feedback, or guidance. The original post seems to suggest a similar experience to mine, however, mine doesn't get alleviated, no matter what I do.

My symptoms, in detail:

I sigh multiple times a minute gasping for air (3 times on average). 1 out of 10 sighs I take feel like I got air inside my lungs. I sigh while sitting down, laying down, relaxing, walking, talking, and especially after eating. It is lowest when I go to sleep at night and start again badly 40 minutes after I wake up – but it is 24/7. I get sore in my upper lungs and upper back frequently during the day when attempting to get air in. I do not struggle to breathe out (I know what asthma feels like), I struggle to get the air IN, because it feels like there’s a barrier blocking the air from going through my throat (tightens) into my lungs. There are times I’m eating and choke on my food because I try to take a deep breath. My throat is sore, I do not cough, but do swallow saliva all day. There's time where it helps to stands or sit up and even hold to furniture to push the breath in.

My history:

I moved to Florida in 2012 after being raised in a brick/concrete house in the mountains of Madrid, Spain. Along this time, I took 8 months of antibiotics for a possible exposure to tuberculosis I had that ended up being false (x-rays). When I moved to the condo in Miami, which had mold in it, shortly after I started to feel tightness in my chest and dizziness that would make it incredibly uncomfortable to walk on the beach along the shoreline.

On 2013 I moved to a college dorm and got rashes everywhere (Dermatitis Hepertiformis). Turned out I have Celiac Disease and adhered to a strict GF diet where I use a portable tester to make sure my food has under 20ppm of gluten. My shortness of breath happened mainly outside in the heat and humidity and inside with the sensation of “missed yawning.”

On 2015, I moved to a different, older building and noticed thick postnasal drip accompanied with severe chest tightness. On 2016, I went back to live with my mom at a condo in the beach and had extreme episodes of tightness in my chest, sighing and not getting a breath in despite multiple attempts including a sore back and lungs. Upon going to the ER, oxygen was normal, X- rays normal, the one thing the Dr. noticed was a lot of mucus running down my throat.

Later, 2016, I went through an endoscopy that came out with severe burns in my stomach from acid & was put on antibiotics for 5 months and continued with Omeprazole for the next couple of years until I moved. My symptoms, however, persisted. Moreover, I went to a ENT who looked at my Vocal Cords and prescribed speech therapy for Vocal Cord Dysfunction. Some of the exercises I apply today. The measured success rate is the following. Note that -1 represents an attempted breath, 0.5 a half breath, and 1 a breath that feels satisfying.

2:08pm -1
2:08pm -1
2:08pm -1
2:09pm -1
2:10pm 0.5 (with speech therapy exercise)
2:10pm 1
2:11pm -1
2:11pm -1

However, it is not reliable each time:

2:20pm 1 (breath taken without speech therapy exercise, mouth wide open)
2:21pm 0.5 (breath taken with speech therapy)
2:21pm -1 (breath taken without speech therapy exercise, mouth wide open, sore in back and lungs)
2:22pm -1 (breath taken with speech therapy)
2:22pm -1

On 2018, I decided to move to a cold, dry climate in Colorado. This helped about 20%. Then, I started seeing a holistic doctor and tried a low histamine diet, eliminating foods I’m intolerant to such as eggs, corn, lentils and tomatoes (through IGG blood tests) and antihistamine supplements like Quercetin and Cromolyn Sodium as well as moved out of moldy homes into new ones and tested them for mold. I felt a change in my energy levels but still struggled immensely with not getting a breath in. And nothing, no change after 1 year and a half of following this rigorous plan. Not even with the lowest histamine foods such as air fried sweet potatoes with salt and nothing else would help my breathing. I still gasped for air. I also had severe IBS episodes, one resulting in an ER hospital visit where I needed 7 bags of fluids because of how dehydrated I was.

On 2021, I did a sleep study that appeared to be normal. Then, had a heart monitor on my body for a full month and they saw some arrhythmia with my heart speeding (there was one result where it went to 130 in middle of the night) but the doctor deemed results as normal and moved on. My heart ultrasound appeared normal as did my gallbladder. Blood tests appeared normal all these years aside from inflammation markets that are quite elevated and at times a white cell count that was elevated.

Recently, 2021, I went to a Pulmonologist. When performing breathing tests, he would ask me to “breathe normally” after multiple failed tests until I forced it down and the results show no abnormalities. Also, a CT scan indicated my lungs are inflamed. I went to the Gastroenterologist and again, acid results. The normal scores should be 14, and I’m at 24. I have been taking Pepcid twice a day since then (a month ago) but have no visible results. I still sense my throat closing sighing 3-4 times a minute. I tried taking aspirin and it seemed to alleviate but not long term. I also take a steroid inhaler named Symbicort twice a day, and it helps, but again, not enough. It is still so, so bad I have a need to grip to furniture and push to help my lungs receive air.

My current medications include Pepcid / twice a day, 2 aspirins/ twice a day, Reactine /twice a day, Symbicort /twice a day , and Claritin nasal spray, hydroxyzyne 2 tablets before sleep. Some of these medications are Canadian as I am currently visiting Montreal, Canada and got about 10% worse than in Colorado. The building i'm staying does not smell moldy and was built last year.

Nothing has really alleviated the problem. I feel desperate. Insights welcome. Thanks

PD. Oh... and for those that believe in alternative stuff... I have a positive Lyme disease test suggesting chronic lyme and mold toxicity illness. On 2020 I did the Double Dapsone protocol for 3 months without antibiotics.

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Replies to "Hi there, I read through most of these pages and thought of sharing my struggles in..."

Hello @sussistrikesmichelle and welcome to Mayo Clinic Connect. That is sure a lot of history to unpack and quite the journey you have been on in seek of some relief and answers. I commend you for all of the lengths you've gone to in seek of alternative environments that may better serve your health, or at least not aggravate it. I think that is so brilliant and you are very fortunate to be able to do that.

All that said, I think you are so right to keep seeking answers and untangling the web of symptoms and health diagnosis to see if there is an intersection at which point your shortness of breath can be explained.

I would like to bring in members who may be able to support you. Members such as @amirreza @vfparker @gabrielm and @gentlehelix1 have all been recently active sharing their experiences and/or updates. I am hoping that they can share more with you after reading your experience.

As well, I am guessing that you've tried nearly everything in your power already, however, I wanted to share this article just in case. If there is even one suggestion in the article that could minimally help you in the interim, that would be wonderful.

- Home Treatments for Shortness of Breath:
https://www.healthline.com/health/home-treatments-for-shortness-of-breath#drinking-coffee
Did you move as a youth or young adult from Spain out of curiosity? Just wondering if your age and change of environment may have played together.

@sussistrikesmichelle As I was reading through your story, I couldn't help thinking about allergies in addition to food allergies. Have you been tested by an allergist? I have allergic asthma, and do allergy shots for molds, dust, weeds, grasses, ragweed, and cats and they help me significantly. I do have cats, but I manage OK and have HEPA filters.

Another problem I had came as a bit of a surprise. I was creating excess phlegm in my lungs and I have a physical problem with one side of my chest being too tight and not expanding properly, so I was trapping phlegm and it would progress to a chest infection which I noticed when my resting heart rate went up. I also had old dental work. All of my silver amalgam fillings had been removed several years ago and they can release mercury vapor. I used to get a sore throat after chewing my food which stopped happening after those fillings were replaced. I also had old root canals and crowns because of breaking my teeth as a kid, and the root canals were starting to fail. Eventually I went through the process of replacing those teeth with Zirconium dental implants which are a type of ceramic and they contain no metal. It is a long process of healing bone before implants can be placed, and then more healing before they are solid enough to attach new teeth. As soon as the bad teeth were removed, my breathing improved dramatically and I no longer had the extra phlegm all the time. For the first time, I had no metals in my body and I could breathe.

Then 3 months later, I broke my ankle badly, and I needed titanium plates and screws to fix it. Again, I had breathing issues with excess phlegm, and I also developed chronic hives and my ankle hurt with the hardware on it. It's a year later, and I just had the hardware removed, so I am back to being metal free again, and I am breathing much better in spite of my allergies. If you were living at higher elevations in Colorado, there is no ragweed and a lot less mold, so that could account for the improvement you had, however, Colorado has had poor air quality due to wildfires this year and last which has actually spread across the entire country. It sounds like you have serious allergies to molds, and I do too. Even with doing my allergy injections for molds, if there is a piece of fruit in the kitchen that grows mold, I will have a lot of symptoms until I find it and remove it.

Have you been seen by an environmental medicine doctor? I have been helped a lot by a doctor in this specialty. There is a provider search button on the top right page of the AAEM website at https://www.aaemonline.org/

I had a lot of problems with out-gassing of new building materials. Carpeting and pressed wood products like plywood or masonite release formaldehyde vapors. We built a home with formaldehyde free insulation and I seal coated all the plywood floors before the hardwood flooring was laid on top of it to greatly reduce formaldehyde. We have no carpeting. That has helped me a lot and some people need to avoid things like this.

Have you considered environmental allergies as a possible cause for your symptoms?

How is your diet? Do you consume a lot of dairy products? The things that can help you are breathing through your nose, getting enough sleep, not doing hard exercise, not putting pressure on your larynx, and talking normally.tell me youre life style

@ sussistrikesmichelle thank you for sharing your experience. Have you tried breath holding techniques to see if that helps? That’s part of the Buteyko breathing method that I’m sure you read about but curious if you tried it. That method is what helps me the most. They teach a rescue exercise where you hold your breath while taking steps or hold your breath while sitting still for as long as you can, and you repeat this a few times. It helps build up the CO2 and calms the breathing. I don’t think it would hurt to try.

It sounds like there are some issues that may be contributing to the air hunger such as inflamed lungs. Have you tried and anti inflammatory diet?