← Return to HIGH Factor VIII (8) Blood Clotting Disorder and Impacts to life/COVID

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@katherina

Thank you for your reply. I didn’t know or understand the level could go down. I am recovering from shoulder surgery in May, I had read surgery can increase it. My van willdebrand test was high as well. I am still waiting to hear from the doctor. I’m sad to think about going on blood thinners as it was really awful when I had to in the summer with regards to female issues and wound up in the hospital because of that.

It is extremely difficult to find any information on this factor 8 and my doctor won’t make an appointment with me, he’s booked for months and says we will just message about it.

Why no deep sea diving? Pressure?

Thank you again!

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Replies to "Thank you for your reply. I didn’t know or understand the level could go down. I..."

Hi Katherina,

I can relate to how you feel. I was really upset about having to take something for the rest of my life but having been through having had PE's, I didn't really see another option. Once was more than enough and I can remember feeling a bit traumatized by it.

Yes, I believe the deep sea diving was about pressure and oxygen level should something go wrong.

I'll see if I can find some of the information I had about F8 – or search for more recent material. My appointments are now just annual 10-minute check-in's so I don't get to pick my dr's brain about things like I used to but I may request a test just to see where things stand now.

In the meantime, I'll be keeping you in my thoughts for your recovery from the shoulder surgery.

Carrie

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