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High Factor VIII (8) Blood Clotting Disorder and its Impacts on life
Blood Cancers & Disorders | Last Active: Sep 10 9:49am | Replies (133)Comment receiving replies
Hi Katherina,
Just to share part of my experience with you. My first F8 test result was absurdly high - 400+ - almost didn't survive that but I did. My F8 was tested several times after that and it did drop after a several months. In my case, the reason it dropped was because of recovery from trauma back injury. After a few years, we stopped testing because it settled in the same neighborhood as yours, which is still plenty elevated. At that point, we figured it wouldn't improve much more and was the "real deal" elevated F8 condition. I was on coumadin for many years but switched to Xarelto a few years ago so I could have my green leafy veggies back.
As Sue mentioned, what other tests they do will depend on your specific situation.
I don't know if living in a high altitude increases the risk of clots or PE but you did remind me that I had to promise that I wouldn't go deep sea diving or jump out of airplanes. I left to door open for hot air ballooning. LOL.
Replies to "Hi Katherina, Just to share part of my experience with you. My first F8 test result..."
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Thank you for your reply. I didn’t know or understand the level could go down. I am recovering from shoulder surgery in May, I had read surgery can increase it. My van willdebrand test was high as well. I am still waiting to hear from the doctor. I’m sad to think about going on blood thinners as it was really awful when I had to in the summer with regards to female issues and wound up in the hospital because of that.
It is extremely difficult to find any information on this factor 8 and my doctor won’t make an appointment with me, he’s booked for months and says we will just message about it.
Why no deep sea diving? Pressure?
Thank you again!