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My husband has PLD (polycystic liver disease) with an extremely enlarged liver
Transplants | Last Active: Dec 27, 2023 | Replies (17)Comment receiving replies
@seantraci9, Please accept my welcome to Mayo Clinic Connect. We are an online community of patients who come here for a variety of reasons to meet others with health situations similar to ours. We ask questions and we share from our own experience to support and encourage others.
I am a transplant recipient and a volunteer mentor. I would like to help you to meet others who may be able to provide some helpful information.
A re you looking for information for yourself about polycystic liver disease? Have you recently been diagnosed? Are you currently looking for a doctor? What are you comfortable to share with me that will tell me a little more about your reason for coming to Connect?
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I have been diagnosed about a year ago with polycystic liver disease. I have cysts on my kidneys, liver and pancreas. I cannot wear a bra because the liver is pushing against my ribs, uncomfortable most of the time. did your husband ever have his cyst drained. I live in thousand oaks calif which is in ventura county. I am looking for a doctor who deals with polycystic liver disease and kidney disease.I have read thing not to eat but that's about all. I cannot find anyone who knows about this disease. can you help I will take any information I can get. I am 76 years old, very active, for instance i am putting in a retaining wall in my back yard so I am active.
thank you in advance for the help. Jill