I have been diagnosed about a year ago with polycystic liver disease. I have cysts on my kidneys, liver and pancreas. I cannot wear a bra because the liver is pushing against my ribs, uncomfortable most of the time. did your husband ever have his cyst drained. I live in thousand oaks calif which is in ventura county. I am looking for a doctor who deals with polycystic liver disease and kidney disease.I have read thing not to eat but that's about all. I cannot find anyone who knows about this disease. can you help I will take any information I can get. I am 76 years old, very active, for instance i am putting in a retaining wall in my back yard so I am active.
thank you in advance for the help. Jill

@rosemaryabraham
Ever since I started on Xeralto, blood thinner, and Valsartan, my polycystic liver has been giving me pain. My blood tests for liver health are abnormal. My nephrologist says she will refer me to a liver specialist after watching for another 3 months. I read online the side effects of the two medications I take is liver damage. Both my cardiologist as well as my nephrologist insist I need to stay on these meds for the rest of my life. Xeralto prevents a stroke and Valsartan keeps my blood pressure down. Am I to just accept this fact about my liver damage and go on with life and be grateful the drugs are helping me in general? I am 69 so I guess I can consider myself fortunate I do not need a kidney or liver transplant in the near future. Just looking for someone that can relate to what I am going through.