Hi MaryLynda, I moved your question to this exiting discussion about ET so you can connect with others who have essential Thrombocythemia like @shenriq @claire39 @lefsequeen @sstillwell @zeffirino @mpt77 and @huronshores.

MaryLynda, it looks like your message got cut off before you finished it. Can you explain more about what is happening with your eye and the right side of the head? When were you diagnosed with ET?

Two years on Hydroxy and my energy level is low though that may be due to other meds but my suspicion is Hyd, Hard to know if it's mid 70's age?

Hello Marylynda...I too have ET and have fatigue. Like you, the fatigue used to be extreme but I have been on Hydrea for three years having it increased recently and slowly the fatigue lessened and my energy increased slightly. It takes time for the hydrea to catch up with the disease. My best advice is to do what you need to do in the morning and save the afternoon for resting.
I think we will always have fatigue so we have to really take care of yourselves. That is all I can say for now.....hope this helps....Claire

I have periods of extreme tiredness whenever my red blood count drops. I have ET and am anemic. I had been on hydroxyurea after an anemic episode in the 80s. Had a bone marrow biopsy that showed my marrow wasn’t functioning. Was switched to Anagralide a year or so ago. Forgot to take anagrelide for a few days and my hematocrit went up to 27 which was the highest ever but so did my platelets. Now on a balancing act with platelets and hematocrit. Have had 4units of red blood cells in the last 3 weeks and feel energetic now