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Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21, 2024 | Replies (9354)Comment receiving replies
Replies to "At first I had two large cavities. With the meds, the oNE cavity went away, the..."
Rifampin,Zithromax, and ethambutol
That is what I am currently taking, on month 6.
Any problems with them?
@egayle187 Hello. I just read your post and see that you plan to return to gardening. I love do that also. I hope that you know to wear a mask when working with potting soil. It has over a million mac microbes per teaspoon. I am so afraid of re-infection, so I now have my husband do the digging and re-potting for me. I still enjoy gardening by picking out the plants at the nursery and picking out the spots where they will go in the yard. Also, remember to wear gloves or wash ypur hands good after trimming/handling leafy things. Leaves are known to be a source for piicking up pseudomonas, another bad microbe that commonly attacks those of us with compromised lungs. I don't mean to be a Debbie-downer. I just want all of us to be as healthy as we can.
@sophie1019 Hi Sophie, thank you for jumping in with your response. Congrats on getting off of the 'Big 3'! I hope that you stick to the info on how to avoid re-infection. You mentioned losing 22 lbs.; I had lost 26 lbs. With the mac under control, I have gained 16 lbs back and continue to gain more. Did you get lab results back recently showing that the mac is gone?
Thank you for the suggestions. I wasn't thinking of the mask outside, but moving the indoor plants to the back porch left me coughing all night.I'm so glad you reminded me of the reinfection possibility. Asthma keeps me inside most of the year and I was ready to jump right in as soon as the air warmed up. I'll be careful.
No I still have a very small cavity in my upper left lobe. The pulmonary doc said he would keep a check on the cavity, and since I feel good, walk everyday, he would give my body a rest. I was also on an iv drip, three times a day. The med was called imipemem, or something like that. No side effects whatsoever. So far, so good. He gave me a prescription of predisone, just in case I start feeling bad. That stuff works very good for me. A 20 MG tab for 5 days. When I take the very first one, it seems to knock out whatever is trying to creep up. He then told me to call him asap, and get in to see him if I start to feel terrible and the predisone don't work.... pray for me as I do for others in this forum...
Sophie, you will be in my prayers! Hang in there and keep up the good work!
I will pray for you, that is something every one of us can do for each other.
What were the daily meds that you had to go onto?