← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Discussion
Comment receiving replies
@suzie2017

What does MAC infection do to the body if the patient does not seek treatment?

Jump to this post


Replies to "What does MAC infection do to the body if the patient does not seek treatment?"

Thank you Suzie... I appreciate your info!

@alleycatkate It might be a good idea to not get more cats after these two have lived out their life. It is said that the dander is so sticky that it can be found on the walls six months later after a cat is gone from the house. You may want to look into it more if you want to continue to bring cats into your home. A hepa air purifier is def a good idea. I have read on asthma sites to bathe your cat regularly. We both know how much they would enjoy that. Not! Enough said. On a positive note.....what a rewarding life to be involved with animal rescue! My best friend does this also. She does animal transports; mainly dogs. She drives them to other states for adoption or lets some stay overnight at her home during a transit. Animal lovers are the best!

@alleycatkate, Hi, you asked about trying Clear Lung. I think it would be good thing. I have read the list of ingredients; they are lung opening herbs like black licorice, and others that calm a cough. I use Breathe Easy tea by Traditional Medicine, it has some of the same ingredients as Clear Lung. The tea always relieved that extreme tightness in my chest and cleared out mucous. The tea is sometimes carried in grocery stores in the Natural Food aisle. I asked my grocer to carry it and now they do.

@alleycatkate About nebulizing saline....it is recommended that people with bronchiectasis and/or mac do inhaled treatments of 7% sodium chloride (saline) to thin mucous and make it easier to cough up. Plus, the saline is an irritant that induces cough to make you bring up the phlgm. If you don't have issues with mucous in your lungs, then maybe you don't need it. You said your doctor said not to add moisture to your lung. There is something to be said about that too. Excess moisture invites a bacterial breeding ground. When I lived in Virginia, I would get lung infections all of the time. My lungs felt wet all of the time. I would go to Tucson, Az. To 'dry out' my lungs. It always worked. I eventually moved to Tucson and did well for awhile. As my body acclimated to that climate, the bronchiectasis continued to progress and then I caught MAC from our stupid hot tub. I now live in S.C. near the ocean (6 yrs) and it has been the best place for me. Bottom line is, you can discuss it more with your doctor and follow your gut feelings about what your body needs.

Nothing more rewarding in my book but I am an "X" rescuer now. It takes it's toll after many years. I am chuckling over bathing my cats...

The doctors have all recommended Musinex and we have never heard of Clear Lung. Do you know the difference between the two. Musinex works very well loosening the mucous so that my husband can spit it out.

@windwalker ...very appreciative of all of your time and the information you have posted for me. A huge thank you! Somehow I just imagined that you lived near the Mayo Clinic in FL and not S.C. I live on the coast and walk the beach every morning. Somehow I think the salt air is good for me...at least I hope that. Funny, still trying to get my head around bathing the cats....haha.

@alleycatkate Ha! I am enjoying the mental picture of your cats trying to frantically climb the walls aroumd your tub, and your shower curtain hanging in ribbons! I live 2 1/2 hrs north of the Mayo. It is an easy drive down there. BTW, salt air is great for the lungs. It's salt, just lile the nebulized saline some of us do. What is the name of the beach you walk at?

@suzie2017 Suzie, if the misinex is working, just stay with it. He might also enjoy Breath Easy tea. It gets rid of the tight feeling around the chest. It gets the elephant off your chest. I am referencing that commercial on t.v. that shows an elephant sitting on someone. It is an add for asthma medication.

I have to tell you, I think if I had to do it over, I would have asked them to start treating me earlier with the Big Three and not waited until more and worse changes showed on the CT. For some reason, I think it would have protected the areas that had not yet been affected. My CT done last week showed slight improvement after treatment with 6 months of the medications. I have to be glad it was not ongoing worsening but I guess I hoped for more improvement. My Pulmonologist tells me it takes a long time for things to improve or show improvement. So I wish I would have treated it when the changes were a bit more subtle and got it earlier.