← Return to I am looking for others diagnosed with microscopic colitis

Discussion
Comment receiving replies
@lelarkin

I seem to see two types of watery diarrhea, one that looks like brown coffee grounds and one that looks like mucus and is more explosive and less controllable. Thinking the coffee grounds are the EPI and the mucus might be CC. Thoughts?

Jump to this post


Replies to "I seem to see two types of watery diarrhea, one that looks like brown coffee grounds..."

This is interesting…gastro dr recommended 2 Zenpep (40,000) with each meal, equaling 6 per day. It gave me fibrosing colonopathy and I was in agony with the cramping and diarrhea.
I stopped after the worst episode last Friday. Started over with the Zenpep ONCE before my evening meal. So far, so good!
The recommended dosage was WAY too strong is my best guess. I have a follow up appointment in 5 days and am curious to see what my dr has to say. I was diagnosed as having moderate to severe EPI and that I needed a strong dose to be able to digest my nutrition.
The weight loss continued and now I am down to 104. I’m only 62 inches tall and there is NO way I’m taking the recommended dose!
Anyone else had a similar experience?
I can live with the smaller dosage, but I can’t live with the agonizing cramping and diarrhea with the recommended dosage.

The mucus only happens when I take the Zenpep with every meal.
I now only take one Zenpep (40,000) with my evening meal.
The mucus is literally the lining of my colon and the painful cramping is next level difficult and no way to live.
I can live with 5-6 trips to the bathroom a day…
I can’t live with running to the bathroom 15 times a day…
There is no cure, just nutritional management and Zenpep in a dose that enables me to have as normal a life as is possible.
Anyone relate???