Anybody diagnosed with microscopic colitis?

I just shared this comment with someone else in this thread. I hope it is helpful to you, good luck!

I was diagnosed with MC early 2021 as well. Change of diet is not an option, it is a necessity. While your lower G.I. tract is healing, it cannot handle the foods that irritate it. Irritating foods must be eliminated and then can be very slowly re-introduced in the months following relief of symptoms.

Here is an oversimplification of what needs to happen to relieve your symptoms and eliminate the MC:

VEGGIES- greens: NO RAW, only fully cooked. Potatoes and puréed squashes are OK No tomatoes or onions.
FRUITS - you may eat bananas, applesauce or applesauce pouches that contain other cooked fruits, then you may slowly re-introduce melons. No citrus fruits! Avocados are ok!!
MEATS - Low fat, no spices, broiled or baked only
GRAINS - Cream of wheat, oatmeal, lower fiber cereals, pasta or white breads are OK. Higher fiber breads or greens may be introduced once symptoms have disappeared. Plane crackers, saltines, plain goldfish, Parmesan or cheddar goldfish, Cheez-Its, animal crackers, etc are OK.
NO DAIRY PERIOD. You may drink almond or oat milk. As for cheese, yogurt, etc., there are plenty of no dairy alternatives.
COFFEE, TEA, HOT drinks: The best bets are decaffeinated tea OR a latte with dairy free alternative milk and decaffeinated

NO-NOs:
NO SPICES,
NO EXTRA FATS or FRIED FOODS
NO ACIDIC FOODS
NO ALCOHOL
NO SELTZER WATER
NO CHOCOLATE
NO COFFEE, even decaf
😞

I did use grated Parmesan cheese and cinnamon/nutmeg for spices, I completely cut out garlic, onions and most of the other spices that I love. I slowly re-introduced everything and have been mostly symptom free since June.

Basically you have to eat bland, easy to digest Foods for a few months. My normal diet is high in uncooked greens, fibers, nuts, dark chocolate, and of course dark red wine at least once a week! So it was extremely hard for me to do this but eliminating the MC was worth the work. also keep in mind that long-term irritation of your G.I. tract can cause other diseases and potentially lead to cancer as well.

My A1C rose significantly because of this but now it is back on the way down.

If you are interested, I am happy to provide you with additional information regarding my experience and as well as two others with the same diagnosis. ❤️

Also, I forgot… No artificial sweeteners. You also may want to try Metamucil (sp?) or a similar product with/without a probiotic. If you try one of these fiber supplements, make sure you drink plenty of water as they can have a constipating effect if there is not enough fluid intake.

Let me know how you make out, all of these things work for me, I hope they work for you!

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

I was diagnosed with collagenous colitis 2008. I was treated with Methotrexate and symptoms disappeared. However, it seems like I developed a different kind of intestinal autoimmune illness after a year or so. Budesonide helped some, but not enough. After a few years I tried Imuran, immunosuppressive. It worked, but there were side effects such as severe infections. After 7 months I stopped taking it and I have not had any recurrence. I have other GI problems keeping me busy, but nothing autoimmune.

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

My husband has microscopic colitis and was prescribed budesonide which helped only slightly and was very expensive, even with insurance. I did a LOT of research and found this information: https://www.hopkinsmedicine.org/gastroenterology_hepatology/_pdfs/small_large_intestine/collagenous_lymphocytic_colitis.pdf and figured it was worth a try. It's essentially 8 weeks of 2 Pepto Bismol chewables 4 times per day. A lot cheaper than the steroid, and only the black tongue and stools as side effects. I highly recommend trying it. His gastro had no problem with this protocol, but I was kind of annoyed that he didn't suggest it as the first line of treatment.

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

I was diagnosed with collagenous colitis about 4 months ago along with exocrine pancreatic insufficiency. I believe I have the EPI under control with Creon, but am having trouble distinguishing EPI from CC. Are there any CC indicators?

I am looking for others diagnosed with microscopic colitis. I'm new to the group and the condition. Any help or information about what my future holds would be appreciated.

I should add, my husband considers this a miracle cure. Maybe won't work for everyone, but certainly worth a try. And I'd love to hear others' experiences with this Pepto course.