← Return to Saddle paresthesia: Where did my normal feeling body go?

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@noanswers

First I want to express how incredibly grateful I am for your response-however I have had 3MRI’s and had the scans read by a very skilled back surgeon.He assured this is not back related. I was so sure it was but 3 doctors Neuro-GP and spine specialist said -no? I feel so lost like I’m adrift on this tiny island calling I’m over here does anyone identify with these symptoms and no diagnosis?I do so appreciate your time and attention to my post❤️

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Replies to "First I want to express how incredibly grateful I am for your response-however I have had..."

@noanswers Have you tried seeing a physical therapist for an evaluation? I know from my own experience that weird sensations can start when something is out of alignment with the spine or pelvis. Recently for me, I was having some tingling and buzzing in my groin area on one side and I had bladder urgency and it wouldn't spontaneously empty completely. I didn't know that my sacrum was out of alignment, and I am regularly seen by a PT. Normaly, my left hip bone gets pulled forward because of facial tightness and this is something I keep working on. I also have a "sacro wedgie" which is a rubber device triangular shaped that matches the shape of the sacrum and you lay on it. When I did that, I felt more pressure on the left side, and then it realigned my sacrum (when both sides felt equal again) and all those symptoms stopped . Things like this are easy to miss, but they make a big difference. It is a subtle shift of position that wouldn't look like anything on an MRI. The key is to find a really good expert physical therapist preferably who uses myofascial release. Here is our discussion on MFR therapy.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Does this type of therapy look interesting to you and something you may want to try?

I have been experiencing saddle paresthesia now for two weeks with no explanation. I have had CT scan and MRI on spinal cord and neck with no findings as well as MRIs on brain to check for stroke with no findings. I'm not in pain, just great discomfort and experiencing numbness in my buttocks and both feet, as well as some loss of feeling down both legs.

I have made three trips to ER and now not sure whether to return as there has been no change in over a week. Greatly distressing. Hope you have had some relief and discovery of what is at isssue.