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Pulmonary Fibrosis*

Lung Health | Last Active: Nov 14, 2023 | Replies (424)

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@maryflorida

We are waiting for the VA to decide if they will get him the medicine, but it takes two months to get an appointment. Is there anything he can take during that time to slow the scarring? Just vitamins? or any other medicine?

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Replies to "We are waiting for the VA to decide if they will get him the medicine, but..."

Sadly, there is nothing that one can take. There is a lot of snake oil promises out there too. So be careful and not waste your money on those. There are only the two meds approved for treatment of pulmonary fibrosis. And as you have found out they are very expensive. My husband had very good insurance and was able to try both treatments. Unfortunately they didn't help him and the side effects were so terrible for him that he decided he had rather have some quality of life than quantity. We explored every avenue possible. Even was granted an interview for a possible lung transplant. But was denied because of his age,75, and other health issues. So, he said "It is what it is" and lived out his last days doing what he enjoyed and preparing me for life without him. For that I am thankful. I hope I don't sound too harsh, and every case is different. Just enjoy whatever time you have left together and never give up hope. But try to be realistic also. May God be with you on your journey.