@gabrielm, yes, it is frustrating. One question: Did you have the Whole Genome sequenced by a certified clinical genetic house trusted by Medicare, or just a partial from a non-certified group? Most of the partials run less than 1% of the whole pattern, and probably will not be covered. Medicare tells insurance to cover it if the doc signs the order, and the genetic house has a history of working with Medicare. Next, do you have a good geneticist you trust? There is a good organization of geneticists who can help you find someone. You might also talk to one of my favorites, Ambrygen.com, or to AYASS.com (I think that is right. It is a pulmonary care house who have done well with me.) oldkarl