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Donald (@donfeld)

Neuropathy Pain at Night: What helps?

Neuropathy | Last Active: 25 minutes ago | Replies (147)

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@richardrr

Thanks John,
The Foundation link looks very helpful. I currently follow the Mayo neuropathy group.
I have tried lots of treatments and medication but haven't discovered the one that will stop the condition worsening. I have tried heat, cold, acupuncture, massage, meditation, Calmer Scrambler Therapy, high dose steroids for three days in hospital, ketamine therapy for 10 days and multiple medications including immunoglobulin.
I am now trying Serolimus/Rapamune to see if that will halt the progression.
Sleep is an issue as the discomfort is worse at night, the numbness and feeling of constriction and feeling of not being able to move my ankles is more severe.
Best wishes,
Richard

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Replies to "Thanks John, The Foundation link looks very helpful. I currently follow the Mayo neuropathy group. I..."

Richard, the one thing I didn't see mentioned was antidepressant therapy. I'm guessing you've been there but it has been beneficial for many, I'm unfortunately not one of them. I use Baclofen for muscle spasm and increasing my dose to 4x day has helped me control my nighttime leg issue and improved my sleep.