Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@akc

Hi my name is Angela. I live in Central Florida and the last two years have been absolute hell. I've been trying to find out what is wrong with me and I was told that somehow I have ended up with spinal cord damage and I thought I had MS but the neurologist are not seeing that. I have been very depressed trying to accept my lack of Mobility. I'm only 56 and I feel like I'm twice that age. I was taking 1800 mg a day of Gabapentin but I am apparently experiencing some very bad side effects from that medication so I'm working my way off of it and now I finally have some energy to work with. I've gotten myself down to 600 milligrams per day. I think the Gabapentin has caused a lot of demyelination to occur to my nervous system and it makes me miserable. I think it's an awful drug!

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I am so sorry you are going through this. Most medicines just create other issues. Have you tried a detox? I am doing that now. Not sure I understand it but the gook that is coming out of me is years of MRI contrasts and anesthesia. Mikayla

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@bustrbrwn22

@awareofangels 1967 OMG I too am having memory loss, I will forget doctor's names but might remember a couple hours later. I hope you find relief as well! Thank you so much for sharing. Sometimes I think this is in my head.

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Hubby and I laugh it off. If you dwell on it, youll be crazy.

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@mikaylar

I am so sorry you are going through this. Most medicines just create other issues. Have you tried a detox? I am doing that now. Not sure I understand it but the gook that is coming out of me is years of MRI contrasts and anesthesia. Mikayla

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Ive been off the Gabapentin for about a year now. Lyrica didnt help so.... I just accept it and am thankful that I got some use of my hand back.

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@kkkreps

hurt my back exiting car last Tues. Looking for exercises to strengthen my core

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Hello @kkkreps and welcome to Mayo Clinic Connect. I am sorry to read that you've injured your back last week. First and foremost, I hope you are taking time to rest your back and let it heal.

Strengthening your core is always a great idea. Without knowing your current level of fitness and what type of exercises you may be comfortable doing, I would suggest you look on YouTube for "Core exercises" + "beginner/advanced" depending on what fits you best.

Here is a search result page for beginner level that may be of help:
https://www.google.com/search?q=youtube+core+exercises&rlz=1C1GCEA_enUS928US928&oq=youtube+core+ex&aqs=chrome.0.0i512l2j69i57j0i512l2j0i22i30l5.4172j0j7&sourceid=chrome&ie=UTF-8
Has your back fully healed?

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I don't even know where to begin! I started having orthopedic issues about 30 years ago with multiple scopes done to clean up my right knee that had been injured in an auto accident. That went on to need major open knee surgery in 2005. I also have a genetic condition called Haglund's Deformity in both feet. I had surgery on my right Achilles in 2010 and just had the left one done this year - with this one, they had to remove about 6" of the damaged tendon, so the remained is stretched super tight now causing calf and knee pain. In addition, I broke a bone on the top of my foot that required surgery and also had joint damage, and broke my right ankle three years ago and have hardware in my right ankle. Some of these surgeries left unresolved issues, and all of them have resulted in major arthritis. They've also diagnosed me with arthritis in my back and shoulders as well as elbows. I have constant chronic pain body-wide. The leg/foot issues have caused not only pain in my legs when I walk or stand too long - but has now caused hip and lower back pain. Something hurts every day - sometimes multiple areas. I now use a mobility scooter for shopping or outings where I will be walking or standing for long periods. It gets very frustrating because I feel embarrassed that I'm always in pain. I worry that my friends and family get sick of hearing it, and I'm just tired of not feeling well.

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I am June. I have had scleroderma and other autoimmune disorders for 23 years now and chronic pain has slowly become a part of my every day life. Worsening as time goes on. I now have a MedTronic pain pump device to control everyday pain.

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I am Shana. Up until 2013, I was very active with hiking, hunting, fishing, running daily. Preparing to return to work as a registered nurse in a trauma center, after my littles started school. Then, while training for a Half Marathon, I hit a wall. I just couldn’t anymore. My feet became too painful to walk on, my knees inflamed and useless. I had no energy. Couldn’t get up off the couch, wanted to sleep all day. My fingers, hands, wrists wouldn’t hold a coffee cup, they hurt so badly. But I pushed through because I had 3 & 4 year old daughters home at the time. My GP sent me to a rheumatologist and she ran a ton of tests. Diagnosed me with seronegative RA, ignoring many other symptoms. Fast forward to 2021, after failing several dmards and Biologics, spending years in pain, I’m headed to the Mayo Clinic in November.

Pain control would be wonderful, but doctors don’t want to give narcotics anymore. I’ve been given 30 lortab 5/500 and they are to last me a month. “Take one a day for bad pain days.” Seriously. I take many hot baths, use ice and heating pads. I can’t do massages anymore (right now) due to pandemic. It’s so frustrating.

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@irishdoe

I am Shana. Up until 2013, I was very active with hiking, hunting, fishing, running daily. Preparing to return to work as a registered nurse in a trauma center, after my littles started school. Then, while training for a Half Marathon, I hit a wall. I just couldn’t anymore. My feet became too painful to walk on, my knees inflamed and useless. I had no energy. Couldn’t get up off the couch, wanted to sleep all day. My fingers, hands, wrists wouldn’t hold a coffee cup, they hurt so badly. But I pushed through because I had 3 & 4 year old daughters home at the time. My GP sent me to a rheumatologist and she ran a ton of tests. Diagnosed me with seronegative RA, ignoring many other symptoms. Fast forward to 2021, after failing several dmards and Biologics, spending years in pain, I’m headed to the Mayo Clinic in November.

Pain control would be wonderful, but doctors don’t want to give narcotics anymore. I’ve been given 30 lortab 5/500 and they are to last me a month. “Take one a day for bad pain days.” Seriously. I take many hot baths, use ice and heating pads. I can’t do massages anymore (right now) due to pandemic. It’s so frustrating.

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Hello Shana @irishdoe, Welcome to Connect. I know it's difficult giving up activities you love due to having so much pain and that is a challenge in itself. Adding the pain and a young family and it's really hard to imagine dealing with it. I'm hoping you find some answers when you get to Mayo Clinic.

Are you going to Mayo Clinic for the Pain Rehabilitation Program? If so, you might find the following discussion helpful -- Mayo Pain Rehabilitation Program: https://connect.mayoclinic.org/discussion/mayo-pain-rehabilitation-program/

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My name is EDNA.I just join the group.I had an upper endoscopy 2 days ago.The doctor found one no bleeding gastric ulcer.She said was 7mm in largest dimension.She also took a biopsy for pylori testing.It was outpatient.I was home within 2hours of the procedure. She prescribed OmeprazoleDr. 20 mg capsule. I have not taken the med yet because the phamasist indicated that interacts with my thyroid medication .Both need to be taken in the morning on an empty stomach 30 min. Before eating.I am also eating gluten free,dairy and egg free. I am new to all this. I am 75 years old.and I only take Syntroid but I take a lot of supplements.Should I see a dietitian for an eating plan ?.Any suggestions ?.I will appreciate your comments.

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@irishdoe

I am Shana. Up until 2013, I was very active with hiking, hunting, fishing, running daily. Preparing to return to work as a registered nurse in a trauma center, after my littles started school. Then, while training for a Half Marathon, I hit a wall. I just couldn’t anymore. My feet became too painful to walk on, my knees inflamed and useless. I had no energy. Couldn’t get up off the couch, wanted to sleep all day. My fingers, hands, wrists wouldn’t hold a coffee cup, they hurt so badly. But I pushed through because I had 3 & 4 year old daughters home at the time. My GP sent me to a rheumatologist and she ran a ton of tests. Diagnosed me with seronegative RA, ignoring many other symptoms. Fast forward to 2021, after failing several dmards and Biologics, spending years in pain, I’m headed to the Mayo Clinic in November.

Pain control would be wonderful, but doctors don’t want to give narcotics anymore. I’ve been given 30 lortab 5/500 and they are to last me a month. “Take one a day for bad pain days.” Seriously. I take many hot baths, use ice and heating pads. I can’t do massages anymore (right now) due to pandemic. It’s so frustrating.

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Many times the Federal Government's involvement causes more problems. Such as advising physicians to avoid prescribing opioids. Meanwhile street use of the narcotics is running rampant and someone trying to obtain legal and supervised use of the medications is told no. Thus, leaving little else than to suffer w/ the pain or turn to illicit purchase of narcotics with a greater chance of addiction and overdosing, and further exasperating the so-called war on drugs.

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