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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: 5 days ago | Replies (566)
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@mikaylar

I did not take Topamax long 'cause it is unpleasant. I took it off-label for an unrelated issue and it cured my Pudenal issue. The neurologist would be the one to ask. Tell them you just want to try it for a bit. After I got relief, my Physical Therapist mentioned that she had read that this helps. What have you got to lose except a week or 2 of feeling a bit off from anti-seizure med? I was 14-1/2 years of treating with everything imaginable. Give it a shot! Makes sense, the nerves are in a spasm.

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Replies to "I did not take Topamax long 'cause it is unpleasant. I took it off-label for an..."
olivedog | @olivedog | Sep 26, 2021

I will ask the Nuerosurgeon on Tuesday. You were only on this for a couple of weeks...I will check with him and see...my pcp has no clue, nor does anybody in the ER, or my immediate area. I must drive 2 hours away. ...that urogyno, has never given me anything. The humidity here was 98 percent at 3 am!!! My feet react to high humidity...this is new as stated by the pft. Only 2 months like this.
The norco, wears off after 4 hours, sometimes longer...during this humidity so bad, been using
Ibuprophen with it for inflammation. I just am not use to this pain, never in my life this bad. I'm lucky I had this Nuerosurgeon appt set up. Thank you for your reply. I have never taken pain pills before, I'm sure many have much longer. I'm hoping since this is so new, Dr. Nagar I see at UCSD Women's Pelvic Health will know. I will bring up Topamax. Thank u for your response!!!! I'm on other
Drugs Topamax does not get along with....but things say that all the time...thank you!!!

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