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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Oct 29 9:41am | Replies (592)

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@mikaylar

After 14-1/2 years of suffering with this monster and trying everything, I took an anti-seizure medicine Topamax for an unrelated problem and BINGO, it worked. Please consider this before you do any surgical procedures. I treated at the University of PA in Phila and they couldn't help. This worked and quickly.

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Replies to "After 14-1/2 years of suffering with this monster and trying everything, I took an anti-seizure medicine..."

Hi, I'm afraid to start any ssri drug, what drug is this, and what reaction do u have from it. I have a Nuerosurgeon televisit, relating to my sacrum and numb feet on Tuesday...could not come at a better time...as,my pcp does not get this...and her lax office records keeper never got the diagnosis.i have now got this in action. I will discuss this large can of worms with the Nuerosurgeon as he will get this...I'm gonna let him know to let my pcp know I need televisits which they refuse, to even ask for new meds, they say those are for sick people!!!! Well I consider myself pretty sick right now...never in my life have I needed pain pills!!! I am a mess . Our humidity
Has been real high, and c I react very bad to this. This is all new rpto me too, I never in 5 years of pain after defacation had it or anything like this until that pft...got too aggressive 2 months ago, and it is relentless. I'm real afraid, I do not want to take pills but right now...only thing that helps.
I was told not to write, by her, yet all her staff told me to. I am definitely going to look for a new pcp,
But right now a bit difficult. This some hard yucky horrid stuff!!! Thank you so very much for writing back. God bless you!!!! Thank God I have a Nuerosurgeon televisit on Tuesday, he is suppose to be kind and compassionate...I'm sure I can get him to set this dumbell doctor straightened out!!!!
Again thank u .....so much appreciated...this is not rare...look up the Pudendal Nueralgia Support
Forum...so many, and why on God's green earth are urogynecologists the only doctors who know of pudendal nerve...we have no urogynecologists in my city....have to drive 2 hours!!!! The ER docs have no clue,,,till they see My Chart records...they think I'm crazy at first!!!
Have a beautiful day, if you can!!!!! Much love.......