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PMR Dosages and Managing Symptoms

Polymyalgia Rheumatica (PMR) | Last Active: Jul 27, 2024 | Replies (468)

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@sbharlan

I was diagnosed with PMR right after my 70th birthday - I am under the care of a great rheumatologist who listens to what I say, and has no problem with me talking to others who also have this issue - My understanding is the goal is to find the lowest possible dose of prednisone to keep you comfortable, and not to try to make the goal zero - hoping that you might get there. I use the DSNS method of tapering, and it works well for me - in these last 6 years, I have had 2 major flares - once from tapering way too fast, and once from standing in the middle of a fire ant hill. I am now tapering from 5 mg per day to 4 mg per day - I am pausing for a few weeks at 4.5mg. I have found in the tapering process, my body rejects my great idea of tapering and I experience some mild symptoms of a flare - night sweats, extra stiffness in the morning, greater fatigue, etc. I have learned over these years, that if those symptoms don't get much worse it is not a flare, and if you baby yourself a little, they eventually subside and if you wait awhile, you can begin the tapering again. This is my experience which I am sharing in the hopes it might help you in your journey. Take care and good luck!

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Replies to "I was diagnosed with PMR right after my 70th birthday - I am under the care..."

I too find this. I was diagnosed with PMR at 59 yrs old. I have been dealing with it for 10 years on and off. So far I have found trying to keep to an anti inflammatory diet, helps when going through a flare up.