I have an appointment with UCSD's Woman's Health, Dr. Charles Nagar, Oct. 19th, seeing a Nuerosurgeon b4 this with fresh Lumbar Sacrum Mri. Dr,. Nagar, whom I have not seen, but did talk to nurse, repairs the pelvic floor, knows of all ligaments, and about entrapment of the pudendal nerve. He works with this directly. I have tried all the shots, made me worse and extremely painful. The pelvic floor therapist brought this all on 2 months ago, by being too aggressive, and admits to it. This is a very difficult thing too deal with as no ER can help you, doctors do not get it, only urogynecologists
and we do not have one where I live. I have been diagnosed with Pudendal nerve entrapment or PNE. I believe I finally located the proper place to go. The pain after defacation is off the charts, now affecting urine flow and sitting. I believe this is more common than people know, and doctors need lots more study in medical school...why should only urogynecologists get this. This create so much stress having the pain, and your regular pcp has no clue...pretty crazy.
This is very real, and extremely painful, very underestimated and over looked. I think I found a very good Doctor finally, I'm hoping...been in practice for over 30 years...now to get there in this pain. The Nuerosurgeon I see Tuesday will obviously be made fully aware of this, to set my pcp straight, along with her never requesting the records of diagnosis.
I have to be my own advocate, as this really needs a lot more attention. You should read the Pudendal Nueralgia Forum,
Many suffer from this...pills again seem to be doctors answers...sorry but I want the root cause, not to be put on some ssri drug, only to cause more problems. Let us hope I am finally after 5 years going to get an answer...it has been there since being over dilated in a hemorrhoid banding 5 years ago. It took me 10 colorectal surgeons to listen...I wasxin 3rdcdegree rectal descent with this nerve pain after defacation. It was after having my rectum repaired, the colorectal
surgeon told me c he could repair my rectum, but the pain would still be there. I needed pelvic floor therapy after...well I did what was told...he had no one to refer to, I found the one...she had lots of knowledge...but as I started this ...she aggravated the problem leading me to where I am now. I surely pray Dr. Nagar can give me help. This has been a long journey that is not over yet. Again much more important medical study needs to be done in this area...ugh!!!! To any fellow sufferers reading this, good luck, I know this is not easy.