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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 2 hours ago | Replies (6019)

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@helenwalker

I was diagnosed with Motor Neuropathy five years ago. I now have hardly any feeling in my legs and feet, and my hands are also becoming very numb. Walking is quite difficult, as I never know where my feet are, and I go off balance very easily and have had several bad falls, one of which caused a broken pelvis. I would just like to know if there are any helpful tips that anyone can give towards dealing with these problems. Obviously I use a stick or walker, and now have an electric scooter which gives me greater freedom, as I am no longer safe to drive myself.

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Replies to "I was diagnosed with Motor Neuropathy five years ago. I now have hardly any feeling in..."

Hello @helenwalker, Welcome to Connect. I also have neuropathy but mine is small fiber peripheral neuropathy and have some balance issues. The neuropathy plus being part of the not so young generation has made walking and balance a little harder for me so I try to be a little extra careful. There are a couple of discussions you might find helpful by learning what others have shared.

-- Neuropathy & Exercise: https://connect.mayoclinic.org/discussion/neuropathy-exercise/
-- Peripheral Neuropathy - Stretching and Exercise: https://connect.mayoclinic.org/discussion/peripheral-neuropathy-stretching-and-exercise/
-- Having trouble keeping your balance?: https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/

A few years back I went to a Minnesota Neuropathy Association meeting and listened to a research scientist who was part of a development team working on a new product called Walkasins that slips on the feet and helps with balance. I think it went into production in 2019 but I'm not positive. Here's more information from the manufacturer on how it works and who might be helped by Walkasins - https://rxfunction.com/

Have you tried any balance exercises or other therapy to help with your balance?