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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: 2 days ago | Replies (9354)Comment receiving replies
My name is Mariah and I have lived with myobacterium avian and bronchiectasis since 2011--and probably a number of years before then. As some have noted, it was a constant cough that took me to my internal medicine doctor who sent me for a lung x-ray. She thought it was pneumonia and so I started on 10 days of an antibiotic. The x-ray was repeated in 6 weeks--no change. So I had an MRI--I was afraid it might be lung cancer, but my internist assured me that the findings did not fit that of lung cancer. My pulmonologist reviewed the various treatments for MAC and I decided to wait. But, after a year and the symptoms becoming worse I started on the 15 month 3-drug regimen to which I was very faithful although I disliked some of the side effects.
I am now living with bronchiectasis and have seen lung function decline although the tests seem to reveal I am doing okay. Last summer we visited Yosemite and Sequoia. The elevation was very difficult for me--the first time that has occurred. I know my tolerance for exercise is much less, but I persist in walking daily, yoga, etc.
I am happy to be in touch with others who have MAC and know it occurs more in women than in men.
Replies to "My name is Mariah and I have lived with myobacterium avian and bronchiectasis since 2011--and probably..."
@windwalker....ohhhh so sorry you have had to go thru this. I have been diagnosed with something called myofascial pain dysfunction /syndrome. First became known when JoHN Kennedy’s physician Janet Travell determined he had it in his back. It can occur anywhere in body that has muscles. I was diagnosed with it in my jaw 35 years ago. Usually keep it in control with bite splint at night and a muscle relaxant. Tdrell
@windwalker, So sorry to hear about the bumps in the road on your trip. Please take care of yourself.
Don't worry about the group, even though I know you will. Everyone will keep their eyes out for new members and questions that people post. I promise you no query or worry will go unanswered. Put your energies on you. Hope the mouth troubles get resolved asap. Colleen
@nannette , Thanks Nan. I am finally starting to mend and the pain retreating.
@tdrell, Hi Terri. Well, I have never heard of what you have, will have to look that up. It is assumed that I have TMJ and I am receiving the same treatment as you. Was put on flexiril and my mouthguard should be ready on Monday. Bought an over the counter one to hold me over. This pain has been horrific. It went into my right ear as well. Sheesh!
@tdrell , Do you still get occasional flare-ups?
@ling123, Hello Ling. Thank you for the kind words. I have been through hell this past week, but, I am coming out of it, thank goodness.
@heathert , Ouch! I'll bet you saw stars when you bit down on that olive pit.
@nick52 , Thanks Nicole. Can always use good vibes. I sent my husband along to Ca. without me for the second week of our vacation. I opted to stay in Tucson with my many girlfriends (I used to live here) sending him up the road without me; cut my stress level way down LOL! He doesn't do well with these kinds of situations. I guess because he hates seeing me in such pain and he cannot fix it. I hope to make it down to Fl. to see you before you go home.
@irene5, Thank you Irene! All of these well wishes from our group helps me feel better; in my heart anyway.
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@windwalker Gosh, Terri. What's happened to you is so horrible. It's so unfair this had to happen when you are on vacation. Can't believe they just pulled your tooth without getting a proper diagnosis. Hope you can find a good doctor to treat the problem with your mouth. With what's going on with your lungs, you don't need the added pain and suffering.