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Small Fiber Neuropathy: Book Recommendation
Neuropathy | Last Active: Jul 30, 2022 | Replies (66)Comment receiving replies
I posted my symptoms on another thread where I e been suffering horribly with all these nasty symptoms for two years now. My neurologist in Tampa Florida did a few tests and blood work yet never ever mentioned doing this test for small fiber neuropathy biopsy (even though many of my symptoms align with SFN.
I asked him last week to please do this test to either rule in or rule out SFN.
He responded and said that neither he nor the other neurologists in his office do this test. WHY would a Neurologist not do this test?
He then referred me to or how I feel pushed me off on the Mayo Clinic in Jacksonville for possible Autonomic Nervous System malfunctioning.
Mayo called me this week and told me it is a ONE YEAR WAITING LIST.
I've asked my Primary Care doctor to assist me in finding a in network neurologist that will do this SFN test.
Two years in suffering YET still NO answers nor have needed tests like SFN has even been done yet.
Replies to "I posted my symptoms on another thread where I e been suffering horribly with all these..."
Find another neurologist. You may have to see a few before you get the right one.
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My neurologist also never mentioned SFN. I stumbled across a podiatrist that suggested the test. A punch skin biopsy confirmed SFN. This quest took 2 years and 13 doctors and so many procedures. I was lucky to find her. I am currently taking pregabalin for the symptoms. Now my quest is to find the cause. I am not diabetic. Mayo Clinic declined my appointment request so I'm on my own again. Try a podiatrist. It is a simple procedure.