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MGUS diet: Any tips on food to enjoy or prevent progression?

Posted by sstillwell @sstillwell, Aug 13, 2021

Hello-any tips on foods to avoid and foods to enjoy that help prevent progression of MGUS? I’ve read avoid radish, cherries, processed, fried. Focus more on fruits. Anyone adhered to special diet and have not had MGUS progress for years? Thank you, Susan

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

sstillwell | @sstillwell | Sep 3, 2021
In reply to @gingerw "Thank you for the "tag in" @colleenyoung @sstillwell First of all, welcome to Mayo Clinic Connect...." + (show)
@gingerw

Thank you for the "tag in" @colleenyoung

@sstillwell First of all, welcome to Mayo Clinic Connect. I see you joined as a member a while back but this is your first post. I'll bet you have spent considerable time reading posts and different ideas! At least, that is what happened to me. There is so much to learn here, isn't there?

I didn't have MGUS for very long before being elevated to active myeloma. I have been following a fairly strict renal diet for many years due to kidney disease, so my food plan didn't really change. As @auntieoakley mentioned, eating healthy is a big thing, and not too difficult to do. Check with your dr about getting a consult with an educated dietician. The more information you have, the calmer and more prepared you are. And, remember, not all MGUS morphs in to multiple myeloma!
Ginger

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Hi Ginger, yes I have spent a lot of time reading posts :). I hope your myeloma treatment is going well. I think the renal considerations are going to be important for me too. I can see a slow rise in my creatinine and BUN - GFR still ok range.

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sylvia67 | @sylvia67 | Sep 11, 2021
In reply to @susangs "My hematologist has never mentioned diet and, I have to admit, I’ve never thought about it...." + (show)
@susangs

My hematologist has never mentioned diet and, I have to admit, I’ve never thought about it. Something to think about though for when I see her next.

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Nor did my hematologist mention anything about diet with myeloma and kidney issues

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wyom1998 | @wyom1998 | Sep 13, 2021

Any with MM also have active Mastocytosis? Bone marrow show both.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 22, 2021
In reply to @wyom1998 "Any with MM also have active Mastocytosis? Bone marrow show both." + (show)
@wyom1998

Any with MM also have active Mastocytosis? Bone marrow show both.

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Hi Wyom1998, welcome to Mayo Clinic Connect. You asked to connect with someone who has both multiple myeloma and mastocytosis. I think @megansims might.

Wyom, is this a new diagnosis for you?

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1 reply
wyom1998 | @wyom1998 | Sep 22, 2021
In reply to @colleenyoung "Hi Wyom1998, welcome to Mayo Clinic Connect. You asked to connect with someone who has both..." + (show)
@colleenyoung

Hi Wyom1998, welcome to Mayo Clinic Connect. You asked to connect with someone who has both multiple myeloma and mastocytosis. I think @megansims might.

Wyom, is this a new diagnosis for you?

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Marrow biopsies found at the same time in May

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 22, 2021
In reply to @wyom1998 "Marrow biopsies found at the same time in May" + (show)
@wyom1998

Marrow biopsies found at the same time in May

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What treatment plan has been suggested for you? What are your next steps?

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2 replies
wyom1998 | @wyom1998 | Sep 23, 2021
In reply to @colleenyoung "What treatment plan has been suggested for you? What are your next steps?" + (show)
@colleenyoung

What treatment plan has been suggested for you? What are your next steps?

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RVD weekly on 28 day cycles x 4 then transplant for MM in December.
I am frustrated nothing is addressed for mastocytosis. I think those symptoms are worth treatment, but doctor says no. BP sits around 98/55. Seems low to me.

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deryl50 | @deryl50 | Sep 27, 2021

Do any of you have afib and MGUS. I am wondering if afib meds caused blood disorder??

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deryl50 | @deryl50 | Sep 27, 2021

Has anyone had MGUS discovered after taking the COVID vaccine?

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5 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 27, 2021
In reply to @deryl50 "Has anyone had MGUS discovered after taking the COVID vaccine?" + (show)
@deryl50

Has anyone had MGUS discovered after taking the COVID vaccine?

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Hi Deryl, welcome to Mayo Clinic Connect. You'll notice that I moved your question to the Blood Cancers & Disorders group. I did this because you'll find members talking about MGUS in this group and can connect with people like @gingerw @auntieoakley @anniemaggie @susangs @momofthree1 @gmajudy @cctoo @dazlin

Here are a couple of other discussions that may interest you.
- Always run down with MGUS: https://connect.mayoclinic.org/discussion/always-run-down-with-mgus/
- MGUS https://connect.mayoclinic.org/discussion/mgus-2d464e/

I see that you are looking for a cause for your recent MGUS diagnosis and ask about the vaccine or a-fib meds being the potential culprit. The precise cause of MGUS isn't known. Genetic changes and environmental triggers appear to play a role. It may be a frustrating pursuit to seek the cause. By connecting with others here, I hope that you can turn your focus and energies to coping with the diagnosis and staying healthy.

What questions do you have? Has your doctor set up a follow-up schedule? How frequent?

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