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@sueinmn

Massage therapy helps me, especially myofascial release and trigger point pressure on the worst joints. Also, daily stretching and walking.
I get out of bed every morning, no matter how awful I feel. Eat breakfast, shower, get dressed. By that time my body wakes up a little and I do some chores or take a walk. Certainly I will stop and rest when I feel the need, but I find sitting and/or lying down too much seems to "feed the pain" whereas mild activity can make me not notice it so much. Regular bedtime, no TV in the room, just read for a bit. Also, I get higher quality sleep if I stay up as much as possible every day. I would characterize my fibro as sort of mild, with exacerbations from time to time. I have lived with it, with varying levels of severity for over 35 years, even before most doctors believed it existed.
Sue

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Replies to "Massage therapy helps me, especially myofascial release and trigger point pressure on the worst joints. Also,..."

This is a great plan. Stable, moderate, flexible. You are an inspiration for others living with fibromyalgia and other chronic pain syndromes.

One of the best phrases I learned while attending Mayo's Pain Rehab program was "march before you feel like it", and you certainly do Sue!

I've lived with FM for about same as you. I use stretch bands, elliptical, bike & free weights @ gym 2-3 times a week. I've lost over 30 lbs. the past three years. I've been swimming 2 x a week for several months. And I've been eating healthier the past few years. Berries & greens help FM I think. I have to ease into my days usually & sometimes have to push myself to get to the gym. But I don't give up, although the pain does get discouraging. Best to all.

I see an osteopathic physician monthly for an adjustment. Little fearful of chiropractic as I have scoliosis from infantile polio. Have to make a reason to get up - mine is the 14 year old rescue dog by my bed. I hate having to pace myself when I used to go full tilt every day. Covid to some extent has given me a reason to slow down without the guilt. Meditation tapes and reading pass the day agreeably. I also like to do jigsaw puzzles until my back starts to hurt. I also write articles for my CCRC community and volunteer at two local libraries when I am able to walk well enough. The fatigue and IBS are my bugaboos. Mary Ellen

Sue, I noticed you are also a member of the MAC group. Do you think there is any correlation between MAC and fibromyalgia. I also have both.