← Return to High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

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@katherina

Hello Heidi! I was just diagnosed with the high factor 8 as well after having pie’s following shoulder surgery and a mild stroke. Looks like they will prescribe me blood thinners too. It’s very new the test result. You posted a while ago. How are you doing? Have you found any other information? Hope you’re well.

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Replies to "Hello Heidi! I was just diagnosed with the high factor 8 as well after having pie’s..."

@katherina im doing great! I have not had any clots since being on Eliquis initial dose not maintenance dose. I still have pain in my clot leg. It's my u Der standing it may never go away. It's something I live with. Sometimes it's bad here and there but there's never been an issue. They think it's just because my body has had to reroute around the injury. There is definitely a lack of resources for high factor VIII but it's getting better all of the time. I did find info on this website of value as well. In case you find it of interest. https://www.stoptheclot.org/