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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
wow, This is good to know! My mother want into the hospital at 7000 ft because she started coughing up blood via a capillary bleeds and they set her up for a lobeectomy within 8 hours. She refused the lobectomy and they went in and cauterized her capillary; stopped the bleed. She came back down to 2000 ft and has been fine since. This makes me even more thankful she refused. I know this is a VERY different senerio, but the message for a lobectomy is still the same. Thank you for sharing.
Replies to "wow, This is good to know! My mother want into the hospital at 7000 ft because..."
What probiotic do you recommend?
@chinasmom Hi Becky! I am doing vety well lung-wise. My back had bad pinched nerve. How are you? Thank you so much for posting this info. I tell you, we have the best community here! I made hard copy notes of it in my notebook.
@1478 What did you mean by "we have to trick the bacteria to kill it"? By using a secret agent bacteria? LOL. Ok, I am just being silly now.
I had some very occasional bleeding from the lungs. It was just a few drops in my throat and stopped almost immediately. But the last time it happened the blood soaked several tissues. Fortunately it stopped quickly. My Dr. said if it happened again and the bleeding didn't stop, I should go to the ER. I would need an interventional radiologist.
@1478 Hi there. I am hoping the discovery of that new 'crisper' gene will help us.
What is the new “crisper” gene?
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@windwalker, I believe it was called vascular and interventional radiology. Where they cauturize, burn, the blood vessels from inside to get the bleeding under control in the lungs. Hope you are staying well an staying strong!
Becky