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Fibrosing mediastinitis

Lung Health | Last Active: Oct 20, 2023 | Replies (41)

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@jennifermc

Hey. Do you mind sending the Dr. you went to. My husband was diagnosed 7 years ago at Vanderbilt and saw Dr. Loyd. He's been having complications recently and we don't know who he should since since his doctor retired.

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Replies to "Hey. Do you mind sending the Dr. you went to. My husband was diagnosed 7 years..."

Hello and welcome to Mayo Connect. We are a community of patients and caregivers who try to help one another. We are not medical professionals so cannot provide medical advice, but can share our experiences
My very first call would be to Vanderbilt to see who has taken his patients. That is what I did last year when my favorite hand surgeon moved away, and the staff found me a great replacement.
Have you tried that?
Sue

Hi. There are two specialists I highly recommend who worked closely with Dr. Lloyd and who have been lifesavers to me: Dr. Thomas Doyle, a pediatric cardiologist at Vanderbilt Children's Hospital. He has performed three heart caths / lung stenting surgeries on me and is expert on the impact of this disease. In addition, pulmonologist Dr. Tufik Assad, who studied under Dr. Lloyd. He is with the Williamson Medical Group in Franklin. He and Dr. Thomas have worked as a team on my care. Hope this is helpful.