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Stage IV melanoma: What's your experience with immunotherapy?

Posted by Annie @mlenney167, May 26, 2021

Trying to help someone with a recent diagnosis - Interested in patients’ experience with immunotherapy or other treatments.

Interested in more discussions like this? Go to the Cancer Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 22, 2021
In reply to @emmasmimi123 "Thank you for your comments. After another treatment I will have another scan. If it shows..." + (show)
@emmasmimi123

Thank you for your comments. After another treatment I will have another scan. If it shows continued progression should I insist on an alternate treatment plan?

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Emma, I think you should talk to your oncologist about options available to you should the next scan show progression. When is your next treatment and scan? How are you feeling?

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emmasmimi123 | @emmasmimi123 | Sep 22, 2021
In reply to @emmasmimi123 "I had initial misdiagnosis of TNBC, changed to Melanoma with lung, liver, breast, bone and small..." + (show)
@emmasmimi123

I had initial misdiagnosis of TNBC, changed to Melanoma with lung, liver, breast, bone and small tissue involvement. After four immunotherapy treatments, Pet Scan showed great results in liver, breast, lung and initial tissue on shoulder, but new places along the spine. Is it unusual to have positive & negative results?

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Thanks for your reply. Treatment 10/5, Scan 10/18. Yes I will ask him on the next treatment day what he is planning on if there continued disease progression. I’m feeling OK, some back and leg pain and of course, fatigue. Not debilitating.

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