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Has anyone ever been cured of MAC?

MAC & Bronchiectasis | Last Active: Nov 9, 2021 | Replies (31)

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@ina

Thank you so much Sue for the suggestions. I had been drinking gingerale but still having trouble eating anything. I was able to speak with my doctor yesterday and he ordered some nausea medicine and also told to stop the everyday meds and try 3x a week. He said he was trying an aggressive approach with the everyday treatment. We are to check in with each other in a week to see how I do with the 3x regimen. May I ask how long you have been taking the drugs? Has your body gotten more used to them? Ina

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Replies to "Thank you so much Sue for the suggestions. I had been drinking gingerale but still having..."

At 3x/week my body was able to adjust. When it was stepped up to daily, after 6 months I called "uncle" and the infectious disease doc changed me to 7% saline and no drugs.

How did I adjust? Took meds at night, about an hour before bed, with a light snack. Slept through the worst nausea. Many years ago I had a wicked bout of food poisoning complicated by 24 hour "morning sickness". A coworker told me to drink flat caffeine & sugar Coke and eat whole apples, with skin on - it worked. At first with the MAC meds, I managed maybe 1/8th apple and 2 oz Coke at a time. Then after a few minutes I would try a few bites of something else. Apples are what I give my husband and grandkids when their stomachs are upset. Then I started eating one or two bites at a time at first, then a snack every hour. Also, I would make a pitcher of smoothies - using every fruit on hand, plus carrots, yogurt & protein powder. Keep in refrig and sip 4 ounces at a time.

And probiotics every day - I usually used Jarrow, or whatever my co-op had in the cooler.

Hang in there! You can get through it.
Sue