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CPAP (Phillips recall) and Cancer

Blood Cancers & Disorders | Last Active: Aug 16 1:44pm | Replies (67)

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@serichardson

Hello, my husband has been using a cpap machine for more than 20 years with his most recent machine one of the Philips recalled models. He also has RA and has been sick for the last 5 years with various symptoms; extreme fatigue, extreme dizziness, difficulty breathing, cough, weakness, bowel problem and loss of weight (only 135 lbs now). No one has been able to help. We have been trying to get a replacement machine since January unsuccessfully. We finally have an appointment in 2 weeks with a pulmonologist/sleep apnea specialist. Can anyone suggest questions we should ask during our appointment?

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Replies to "Hello, my husband has been using a cpap machine for more than 20 years with his..."

Hello @serichardson, Welcome to Connect. I wasn't able to get a replacement for my recalled CPAP either so I went out and purchased another brand and started using it. I know it must also be difficult for you trying to help your husband through his various other symptoms. I'm glad to hear you finally have an appointment setup with a sleep apnea specialist and a pulmonologist. I think a good start maybe to just list your husband current symptoms and discuss treatment options when you have your appointment. There is a website that has some cards you can print out so that you can plan your conversation with the doctor that I think you might find helpful. It provides some suggested thoughts on questions - https://patientrevolution.org/visit-tools.

Is your husband still using the recalled CPAP?

You might see a hematologist.