← Return to Autonomic Nervous system vs dysautonomia

Discussion

Autonomic Nervous system vs dysautonomia

Neuropathy | Last Active: Jun 1, 2022 | Replies (45)

Comment receiving replies
@joannemm30809

I don't see anybody commenting yet I hope someone does but I still cannot find out anywhere if you do not fit into the 15 categories of dysautonomia can you still have autonomic nervous system malfunction? I'm having to switch neurologist again because this neurologist in Tampa Florida has not been one bit helpful and basically pushed me off on the Mayo clinic out of Jacksonville which is 8 hours away from my house but the Mayo clinic called me last night and they have a 1-year waiting list to be seen by a neurologist at Mayo clinic in Jacksonville Florida. Like my current neurologist in Tampa Florida thinks I should suffer another one full year with these symptoms and I have any answers! And then I ask my neurologist why he has never done a small nerve fiber biopsy on me to rule that out and he said that his group of neurologists do not do that specific test and he told me to go to a different neurologist now in Tampa that does that test so I'll be starting all over again with another neurologist over these last two years.

Anyone out there with any input as far as these 15 categories of dysautonomia and might not fitting into any of those categories yet it seems like I have autonomic nervous system symptoms for almost 2 years now I'd greatly appreciate any input because I'm totally disgusted with a lot of the specialist doctors I've seen over the last two years. Absolutely pitiful. And the very good doctors at Mayo clinic have a one full year waiting list to be seen. Unbelievable. What a nightmare.

Jump to this post


Replies to "I don't see anybody commenting yet I hope someone does but I still cannot find out..."

I think I saw a newsletter from "The Foundation For Peripheral Neuropathy" that included a search engine for specialists in this field. Get in touch with them

Yes you can still have I have both. Find a neurologist who will do the skin biopsy.

Stanford University has an Autonomic Disorders Program at their hospital. I suggest researching it. If you decide to go, research the heck out of the various doctors on staff and pick the best one. I wish you success in getting a diagnosis and treatment.