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I have questions about Hepatic Encephalopathy
Transplants | Last Active: Oct 5, 2021 | Replies (34)Comment receiving replies
Oh man…Alzheimer’s! Seriously. I’m sure you were depressed. That’s so sad that you got that diagnosis.
I thought it was bad enough when primary finally ran blood tests (after complaining for years about PBC symptoms), and then telling me I had stage 3 liver cirrhosis and I should get treatment for alcoholism! So, quit my social drinking that day, saw a great liver specialist, got diagnosed with PBC, and didn’t go back to the primary.
And, to think we both would have been much better served by an earlier diagnosis. Had I had labs done to check for autoimmune diseases when I first had symptoms I may have survived for many years with needing a transplant. And, you at least could have had an earlier diagnosis and less psychological trauma.
Replies to "Oh man…Alzheimer’s! Seriously. I’m sure you were depressed. That’s so sad that you got that diagnosis...."
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@athenalee Yep, we both were not served well by our PCPs. Mine is such a good guy that it was hard to leave him but he let my osteoporosis slip through the cracks too and I was afraid of something else getting by him.
I will never let that happen again, I will head straight to Mass General if I ever do not get a diagnosis in a reasonable amount of time up here.
I may be interested in the webinars you mention too. I go to an osteoporosis zoom on the first Tuesday of the month now so that would be two at 7:00 pm each first week of the month.
By the way, I have been to two of the JH zooms. Have there been more since those two? I never got any notice of more. Also, do you know exactly what the numerical results of the antibody tests mean?
JK