← Return to Disabling symptoms since distal bicep repair surgery. Any suggestions?

Discussion
Comment receiving replies
@rwinney

Hi @stevetaylor721. You had me at Coach! I come from a very sports minded family, and have a coaching husband. Many props to anyone who coaches (if that is indeed what your title stands for).

I'm Rachel, welcome to Connect. I combed back through your posts to get caught up and was sorry to see you still do not have any solid reasons for your health disturbances since having bicep surgery. It's awesome however that your bicep was repaired successfully.

You've had great support and advice here on Connect which is why it's such a wonderful community. I'd like to throw you a curve ball with a little something different. If you feel up to it, do you mind watching a video presentation that I've attached on Central Sensitization Syndrome (CSS)?

CSS is an upregulation of the central nervous system and sensory input system. CSS can be upregulated by traumatic events, surgeries, you can be born with it. It's tough to pin point as there are no tests to prove, just process of elimination.
https://www.youtube.com/watch?v=8defN4iIbho
As you continue your search for answers, and visit Iowa City Hospital in three weeks, take a look at this video presentation from Dr. Sletten of the Mayo Clinic, and keep it in your back pocket in case nothing else seems to make sense.

I'm wishing you continued perseverance and hopefulness in your journey. You sound like you know how to stay positive, and that's what it takes sometimes, despite being tested.

I'll be curious to know your thoughts on the CSS video. Do you mind getting back to me?

Jump to this post


Replies to "Hi @stevetaylor721. You had me at Coach! I come from a very sports minded family, and..."

Thank you Rachel, I appreciate the reply and information! I am in fact a coach and have been a wrestling and football coach for years. I did watch the video and found it very interesting. I can see how the process of CSS would influence receptors to “trick” the body into thinking something is wrong. I will certainly keep that info in my back pocket as I go through the discovery process (well hopefully there is some discovery) and try to find solutions to my issues. I truly don’t feel that CSS is my issue but of course I would defer to smarter folks than me to figure it all out. My symptoms have morphed a bit in the past week and I am now getting tremors in the morning with a pounding headache, tinnitus (pulsing with heartbeat in left ear, ringing in both) and waves of nausea/dizziness/disconnected feelings through the day and night. I’m still quite restless and have been unable to sit and watch TV, read a book or do much of anything other than pace and walk all day. I do realize how odd this all sounds and my primary is equally perplexed. He’s run a lot of tests for autoimmunity and inflammation, but the only test that has come back concerning were a high complement total. Based on that and my rather extreme rapid weight loss he ordered an abdominal CT scan which came back clean other than the bladder wall thickening and diverticulosis. I am hoping I can get some answers soon as I am truly out of steam and running out of hope. I am not very smart with medical issues and would prefer to leave that stuff to the pros, but someone I know suggested csf pressure as a possibility. I truly have no idea…. Thanks again for the reply and information! It is helping me keep my sanity to have good people like you reply with information that I can mention to my primary.