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Liver transplant - Let's support each other

Transplants | Last Active: 4 days ago | Replies (1606)

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@parrot53

Hello,
My name is Susan and I have been diagnosed with cirrhosis and HCC. My current question is what is the age limit for a liver transplant at Mayo Clinic in Florida? Current requirements to qualify for a transplant, how distance from the facility affects patients order for transplant, and current exception points/requirements for patients with HCC.

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Replies to "Hello, My name is Susan and I have been diagnosed with cirrhosis and HCC. My current..."

@parrot53 - Hi Susan and Welcome to Mayo Clinic Connect. I am a liver and kidney recipient. As a patient I am qualified to share my experiences and to walk with you on your journey, however the information that you seek is best left to the Professionals.
Here is the link to the Mayo Clinic Liver Transplant Program
https://www.mayoclinic.org/departments-centers/liver-transplant/home/orc-20211818
and here is the contact information for the Florida Liver transplant Center:
Florida
4500 San Pablo Road
Jacksonville, FL 32224
Phone: 904-956-3309

Please call them and ask these specific questions directly to the liver department in Florida.
Has your current medical team suggested transplant?

@parrot53 as @rosemarya said, you need to ask those questions to the transplant facility that you are interested in. I do know that back when I had my transplant, 5 years ago today, there was not a specific age at my hospital, Mass General, they looked at the overall health of the individual and how they would do with such a major surgery. Of course they have you do virtually every test in the book too.
JK

Hi Susan, I also have cirrhosis/HCC. I’m 66 and pre transplant, waiting for “the call”.
The eligibility criteria T2 it means 2 or 3 tumors smaller then 3cms or 1 no bigger then 5cms.
Also the limit for your AFP is up to 1000.
You have to wait 6 months after have been approved by your Center to be able to get the exceptions points. You can find a lot info @ Optn.org
Good luck in your journey!!!

Hi Susan...my name is Kathy. I also had non alcoholic cirrhosis and liver cancer. I was diagnosed with NASH in 2014 and liver cancer in 2016. In 2018 the tumor had grown enough to treat. The only treatment was a transplant. I live in California, my insurance company doesn't do transplants and they felt I would not live long enough to get one in California..so they sent me to Mayo Jacksonville. I received my life saving transplant in Nov 2019. I was placed on the active list... I was 70 years young, had 5 tumors that had been treated with chemo, the TACE procedure 2 times, varies treated.
The blessings I received from the Mayo Clinic were miraculous. The entire staff are exceptional. They made me feel as if I were their only concern. Two years later, I'm doing great!!! I thank God every day for His blessings, the Mayo Clinic and of course my donor. Hope my story helps you...blessings to you.