Hello. Glad your heart is doing well! My liver is, thankfully, one of the few things going well in my body these days. I have three autoimmune diseases, one of which caused liver cirrhosis. Sjogren’s came out a couple months after my transplant (around last November), I started having hand tremors, then numbness, tingling, pain, etc. in my extremities and back. My liver doctor said it wasn’t related to meds, so said to see a neurologist.

I had my first Pfizer shot in early February, my neuropathy symptoms increased somewhat, reduced back down a little, and leveled out at this new high. I figured I should go ahead and get the next shot, which I did in early March. The reaction that time was significantly worse and did not decline.

I had my first visit with my neurologist in late March. He suspected Sjogren’s Syndrome, labs confirmed this. He also said since my neuropathy is autoimmune disease caused he wasn’t surprised I had the reaction as my body reacted to the vaccine by developing antibodies in response and heightening my symptoms.

I’ve been on a strict no sugar, white flour, etc. diet, walk 2-3 miles/day, exercise, and, take recommended supplements for neuropathy (the ones that don’t conflict with Tac), and, 300 mgs. Gabapentin at night. Most symptoms have continued, the pain and numbness are worse. The sharp nerve pains have decreased.

Are your symptoms neuropathy related? There’s a good Connect discussion group on Covid vaccine and neuropathy, which also includes other reactions, if you haven’t checked it out. Some people report their symptoms go away or decline, some report continuing or worsening. Some had prior neuropathy, but interestingly many did not.