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I have questions about Hepatic Encephalopathy

Transplants | Last Active: Oct 5, 2021 | Replies (34)
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@contentandwell

@athenalee It was not a constant fog at all, it was episodes of confusion and irrationality. The PCP I had at the time called me on the phone and told me she thought I had Alzheimer's! The neurologist literally laughed at that as did another of my doctors. That was when I changed PCPs.

I really was miserable to not know what was wrong with me though. I was pretty sure it was not Alzheimer's but I did worry that there was something wrong with my brain. I was depressed often. It was actually a relief to find out that I had cirrhosis and needed a liver transplant!
JK

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Replies to "@athenalee It was not a constant fog at all, it was episodes of confusion and irrationality...."
athenalee | @athenalee | Sep 20, 2021

Oh man…Alzheimer’s! Seriously. I’m sure you were depressed. That’s so sad that you got that diagnosis.

I thought it was bad enough when primary finally ran blood tests (after complaining for years about PBC symptoms), and then telling me I had stage 3 liver cirrhosis and I should get treatment for alcoholism! So, quit my social drinking that day, saw a great liver specialist, got diagnosed with PBC, and didn’t go back to the primary.

And, to think we both would have been much better served by an earlier diagnosis. Had I had labs done to check for autoimmune diseases when I first had symptoms I may have survived for many years with needing a transplant. And, you at least could have had an earlier diagnosis and less psychological trauma.

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