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I have questions about Hepatic Encephalopathy
Transplants | Last Active: Oct 5, 2021 | Replies (34)Comment receiving replies
Wow. JK…I can’t imagine having recurring brain fog like that, especially when you didn’t know why! Good thing your neurologist was on top of it.
Lactulose, besides being one of the foulest tasting things on the planet, can be difficult to regulate. I had issues where it made me vomit, so I stopped taking it. That’s when I had my first brain fog. So, I was prescribed something to help my stomach and kept taking …with orders to not stop again or I’d likely die. So, I didn’t stop until my transplant!
Replies to "Wow. JK…I can’t imagine having recurring brain fog like that, especially when you didn’t know why!..."
I think we all can agree we wouldn’t give Lactulose to our own enemies. When in the hospital for 10 days I decided to try adding it with my syrup for French toast and pancakes. I also added it to my hot fudge sundaes, and I am sure we could find other ways. It wasn’t the best, but it was MUCH better. Maybe we could swap other ideas?
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@athenalee It was not a constant fog at all, it was episodes of confusion and irrationality. The PCP I had at the time called me on the phone and told me she thought I had Alzheimer's! The neurologist literally laughed at that as did another of my doctors. That was when I changed PCPs.
I really was miserable to not know what was wrong with me though. I was pretty sure it was not Alzheimer's but I did worry that there was something wrong with my brain. I was depressed often. It was actually a relief to find out that I had cirrhosis and needed a liver transplant!
JK