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@lishensasha

Hello,

My sister Sasha was diagnosed with PD 4 years ago but has deteriorated rapidly. She suffers from extreme rigidness and her speech had been greatly affected. She is using rotigotine patches called nubrenza and madopar 100 levodopa cardivopa 5 times a day 2 pills every day. We are now looking into dbs but her dr says since her pd has been affecting more her nervous system and speech it is uncertain on the benefits she will get.

Any patiens out there with rigid pd that have benefitted from dbs

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Replies to "Hello, My sister Sasha was diagnosed with PD 4 years ago but has deteriorated rapidly. She..."

Hello @lishensasha and welcome to Mayo Clinic Connect. First, it is so great that you are helping your sister by joining this community.

While I wasn't able to locate any current members who have shared their experience with both rigidity/dystonia and DBS, I did find a resource that may be helpful as you explore this as an option for your sister's care.

- Deep brain stimulation: Precision using segmented leads:
https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/videos/deep-brain-stimulation-precision-using-segmented-leads/VID-20457940

Does your sister's doctor specialize in DBS treatments?