Hi I too am a long hauler. Never had lung issues until august 3 of last year when I was hospitalized for COVID Pneumonia…thank God for Mayo and their long haulers research and clinic,. I am finally getting a little bit of relief! I am over a year now but there is light at the end of this tunnel. Please stay strong and keep fighting for answers. The doctors at Mayo are fantastic and diligent to help people with this syndrome! Bless all of them and stay safe!

I’m also dealing with my Long Term Disability looking for any reason to discontinue paying me. Just dealing with them causes so much stress. I have been unable to work for over a year due to my PCSs, and they treat you like you are trying to scam the system. I loved working, and would give anything to be well and work again. No one would choose this this. Have you contacted an attorney to help you deal with them? I have one waiting in the wings to help when/if they do deny me.

Hi, I hear you loud & clear! After 10 months of waiting for a decision about my disability claim, I was just denied.
Prior to Covid in March 2020, I traveled across the country doing work I loved as a Mitigation Specialist working on death penalty cases. I made 3 failed attempts trying to do the work I love until it was clear I could no longer do what is required. A typical interview would take 3-4 hrs and the written report would take about 4 hours. It took me 10 days & 5 hours to write a report. I had difficulty spelling words, confusing thought patterns, writing something I wasn’t thinking…. This when I had to accept I now have limitations that will prevent me from doing my work. I was self employed and now nearly bankrupted bc I didn’t have an income . I pray for everyone who has long Covid that they get what they need and deserve as citizens who contributed in their own ways through their work. I am heartbroken and scared.