Recently diagnosed with Multiple sclerosis

Posted by seanmay23 @seanmay23, Sep 12, 2021

Recently diagnosed with Multiple sclerosis, and looking for help.

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J117,

My wife and I eat a very healthy diet, sometimes too healthy...
Has anyone heard of prescribing ketamine and methadone for pain? That's what I am on through my pain management doctor.
It doesn't work, and all I've read is conflicting or once again I feel like a guinea pig. Please let me know if I am posting my questions in the correct area.

Thanks,

Sean

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@seanmay23

J117,

My wife and I eat a very healthy diet, sometimes too healthy...
Has anyone heard of prescribing ketamine and methadone for pain? That's what I am on through my pain management doctor.
It doesn't work, and all I've read is conflicting or once again I feel like a guinea pig. Please let me know if I am posting my questions in the correct area.

Thanks,

Sean

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Lol, define "too healthy." Are you on vitamin supplements? D is a big one and you need a lot but really they're all important. Also, there's some immunomodulating herbs you can look into. They've been proven to reduce the level of autoantibodies.

Don't know if this is the right place but I've heard of Methadone and Ketamine being used for pain. I believe Methadone releases endorphins chemicals at a slower rate than opioids. Ketamine can be used as an alternative to opioids. It's also been used to treat depression, RA and fungal infection.

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@j117

Lol, define "too healthy." Are you on vitamin supplements? D is a big one and you need a lot but really they're all important. Also, there's some immunomodulating herbs you can look into. They've been proven to reduce the level of autoantibodies.

Don't know if this is the right place but I've heard of Methadone and Ketamine being used for pain. I believe Methadone releases endorphins chemicals at a slower rate than opioids. Ketamine can be used as an alternative to opioids. It's also been used to treat depression, RA and fungal infection.

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@j117 I would be curious where you are getting your information from? Can you provide links to the articles you are referring to, regarding supplements, methadone and ketamine, please?
Ginger

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Mostly the "official" website(s) where medical papers are published (can't look up anything at the moment). As well as medical universities and listening to doctors answering questions about drugs. Probably should have dug up the links before I posted this stuff. I can definitely do that later.

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Eating healthy is great, but I wouldn't mind a steak once in awhile. Lol
The first thing my neurologist said was to begin a vitamin B regime.
Speaking of which, I'm seeing him tomorrow. I'm going to switch to another trial medication/treatment for monetary reasons. Also, I reached out to the MS Foundation for the emergency assistance grant. Anything helps.
Thanks again J117

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Does anyone have advice on utilizing the MS Foundation and MS Society for assistance with money? Especially the steps and contact information for each.

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@seanmay23

Eating healthy is great, but I wouldn't mind a steak once in awhile. Lol
The first thing my neurologist said was to begin a vitamin B regime.
Speaking of which, I'm seeing him tomorrow. I'm going to switch to another trial medication/treatment for monetary reasons. Also, I reached out to the MS Foundation for the emergency assistance grant. Anything helps.
Thanks again J117

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Maybe you could have organic steak. Should only be around 50 bucks lol.

Was sniffin' around and found a little something. It's one of the things I was talking about.

Btw, do you know what your vitamin D level is? I've heard you get the most benefits from at least 40 ng/ml and that your level should actually be higher so you don't drop below that.
https://multiplesclerosisnewstoday.com/news-posts/2016/10/10/genefo-doctor-austin-webinar-effects-of-natural-remedies-mushrooms-on-multiple-sclerosis/

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I was just wondering about something. My neurologist classified me as RRMS, and I know he is highly rated & respected. I am hoping some out there that have more experience with ms could tell me how you are classified rather quickly?
Just a question from someone new.
Thanks in advance.

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@seanmay23

I was just wondering about something. My neurologist classified me as RRMS, and I know he is highly rated & respected. I am hoping some out there that have more experience with ms could tell me how you are classified rather quickly?
Just a question from someone new.
Thanks in advance.

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Good morning @seanmay23 you’ve asked a good question. Your doctor most probably made the decision of what form of MS you have based on what you told him, the timeline of your symptoms, and his experience. RRMS, relapsing remitting MS is the most common form of MS.
https://my.clevelandclinic.org/health/diseases/14905-ms-relapsing-remitting-multiple-sclerosis-rrms
Has your doctor suggested a treatment plan?

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Treatment: Kesimpta for 4 months and my symptoms have gotten worse. I know Kesimpta is not supposed to stop symptoms, but with the aggressive progression of my symptoms, (already using a cane, former athlete, 49) wouldn't I be progressive?

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