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Chronic GVHD ~ Let’s talk about it!

Transplants | Last Active: Nov 15, 2022 | Replies (68)

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@loribmt

Hi Cathy, I was just reading over some of your other discussions about your poor sister and all that’s been going on in her life. With her diabetes, kidney failure and now all the agony of these digestive issues she must be feeling so miserable! A hemoglobin of 5.8 is super low! I’m betting she felt like moving at a snail’s pace!
You’re very loving and generous to be so dedicated and committed to her health and medical care. Caregiving can be pretty stressful so I hope you’re also taking time for yourself to decompress!

Just a quickie…don’t worry about being too wordy! Think of us as all sitting around the kitchen table with a cuppa in the morning. In my group of family and friends we’re never economical with words. A good chat is how we help each other. It’s all good!

With your sister’s unexplained possible blood loss resulting in a low Hgb level, did she by any chance have her Covid Vaccinations? There are discussions in our forum with members who have had the virus or vaccines and are experiencing similar symptoms with low hemoglobin or low iron levels in their blood. Most have had tests and scopes to determine if there is a slow blood leak somewhere only to find it is related to the vaccine. I’m certainly not implying that this is her situation but it might be something worth mentioning to her PCP

https://connect.mayoclinic.org/discussion/iron-depletion-in-blood-and-covid-vaccine/?pg=7#comment-625176

I’ve not had any gall bladder problems personally. But the test your sister’s doctor mentioned is called a HIDA scan. I posted a link from Mayo so you can see what that’s all about.
https://www.mayoclinic.org/tests-procedures/hida-scan/about/pac-20384701

Do her doctors suspect the gall bladder for her stomach and digestive issues?

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Replies to "Hi Cathy, I was just reading over some of your other discussions about your poor sister..."

She is vaccinated. Looking to see when she received shots and I’ll compare blood work before and after the shot. Helpful information!pancreas isn’t producing enzymes . Put on Creon Which helped immediately. Researching that medication maybe a coincidence symptoms began around that time. Her digestive system has been a mess . Webs sites are very helpful greatly appreciate any knowledge I can get my hands on. Love the support!!!

Doctors haven’t mentioned gallbladder. Scans show her gallbladder not an issue. I’m reading different information even when GB doesn’t appear to be an issue. Her symptoms align with GB symptoms. If GB doesn’t look compromised in a scan can it still play a role in digestive symptoms?