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@stevetaylor721

Good luck to you and I hope you get your answers. I’ve got some testing starting today that I hope will show something. A full abdominal CT scan. I’ve continued to struggle each day and feel like I am getting further from recovery, not closer. The last few days I’ve woken up with a “buzzing” sensation throughout my whole body, pounding head and then extreme jitters and nausea. Unfortunately this has not gone away at all. It may get more subtle during the day, and I have periods where I feel relatively better, but it comes back to really whack me. I am absolutely worn out physically and mentally, haven’t been able to go back to work for more than a couple of hours at a time, and am very concerned about providing for my family as leave and money are running out- so I hope for an answer soon! I’m not sure the local doctors I have seen have the resources or experience to figure out what is going on with me, but I know my primary is trying. It is just a very complicated case and I do understand that as I was an active and healthy 48 year old until 8 weeks ago. The endocrinologist I saw told me the local docs would be unlikely to have much luck and tried to get me into Mayo, but they wouldn’t take me in so I just have to hope someone here sees something soon as I am running out of hope. I hope you get your answers and the endocrinologist has some ideas for you. Good luck and please keep us posted!

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Replies to "Good luck to you and I hope you get your answers. I’ve got some testing starting..."

I am so sorry you are having to endure this. The frustration and fear must be overwhelming. Has any doctor offered medication for your nerves yet? You are only 48 and I am 80 so I figure what difference for me but you have many years of living to do. The emergency room nurse told me to keep being the squeaky wheel. We have unusual symptoms and this confuses many doctors. Keep in touch.

Have they see if you have Hashimoto's i have that sensation of like inner tremors and don't go away i think is the antibodies in my brain, horrible plus my T3 from my thyroid is really below the normal range. Hope you find what it is i have been since 2013 trying like nine endocrinologist and no one is good, you should find a functional doctor,

Why wouldn't Mayo see you?

I would expect that they have checked all your vitamins and minerals. You’re mentioning some things my mother had where she had buzzing, and like her skin was crawling, and what she called waves would come over her and through her scalp and her skin. She nearly died. They found out that four or five vitamins were completely bottoming out (calcium, potassium, some B vitamin and 1 or 2 more) and then coming back up a bit and then going back down. She stayed on vitamin therapy daily for 18 years till she passed. I just thought I’d mention it.